Not sure what will happen next

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My mum has been diagnosed with inoperable incurable high grade serous peritoneal cancer which is a reoccurrence of her stage 1a womb cancer.

She's starting chemo on Friday and seems to be very positive. 

I went with her for the consultants appointment yesterday where we went through the treatment, side effects etc, but we never got told how life limiting this all is.

I dont know whether to expect months, years, decades with her.

Outside of her cancer diagnosis a lot of other 'life' has been happening - this just feels like the icing on top of the world suck cake.

We're seeing her tonight for our regular weekly catchup and I dont want to end up in bits again. I guess I'm just feeling a bit lost 

  • Hi  

    I'm very sorry to read of your mum's recurrence of her cancer. I have endometrial cancer and I am stage 4 incurable. I am currently stable after treatment and have been since September 2022. If you would like to read my story just click on my username. 

    I know that this must be a massive blow for you all, as well as all the other life events going on at the same time. I know that you want answers to your questions to try to understand what to expect but I don't think there are any answers at this stage as everyone is different. It is great news that your mum is fit enough to be able to have chemo. It is a harsh regime and is tough to get through but I would go through it again, if it was going to extend my life further. It is tough but doable. After treatment, it took a long time to gain some strength back. I still have fatigue and tire easily. I have brain fog and can't recall information in a timely way. I have medically retired due to these reasons and a general lack of stamina.

    When I was having chemo, the symptoms of my cancer slowly got better and I could tell that it was having some effect. A CT scan at the halfway mark showed that my tumours were shrinking. At the end of chemo there was no evidence of cancer on CT but my oncologist said -  it doesn't mean it's not there. Somewhere in my body cancer cells are hiding and trying to work out a way of multiplying. I don't know when they will succeed but it will happen as my cancer is incurable.

    I hope I've been able to give you some idea of what to expect. As I said, everyone one is different and there are different types of endometrial cancer and different responses to treatment. However, I do remember my specialist nurse saying that high grade/aggressive cancers like mine and your mum's respond better to chemotherapy.

    Try to enjoy your time with your mum tonight and I wish her the very best wishes for her treatment. Best regards.

    A x