Medullablastoma

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Hi my 12 year old has had recurrence in a different place after thinking we had beaten it for nearly 3 years it’s a big blow. Is anyone aware of anyone else with a similar recurrence and any tips? 
grim prognosis but so keen to have her be well and healthy as she seems to be now (no signs it just came up in a routine scan).

on temozolomide 5 days out of 28 and waiting to see about radiotherapy. 

thanks 

  • Hi  

    I'm sorry to read that your 12 year old has had a recurrence and I can understand what a blow this must have been.

    I'm not a member of this forum but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    ((hugs))

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