Medullablastoma

  • 1 reply
  • 12 subscribers
  • 277 views

Hi my 12 year old has had recurrence in a different place after thinking we had beaten it for nearly 3 years it’s a big blow. Is anyone aware of anyone else with a similar recurrence and any tips? 
grim prognosis but so keen to have her be well and healthy as she seems to be now (no signs it just came up in a routine scan).

on temozolomide 5 days out of 28 and waiting to see about radiotherapy. 

thanks 

  • Hi  

    I'm sorry to read that your 12 year old has had a recurrence and I can understand what a blow this must have been.

    I'm not a member of this forum but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    ((hugs))

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"