Peritoneal metastasis and palliative care

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Hi My husband had a Whipple procedure about 15 months ago as he had pancreatic cancer he started to feel unwell after Christmas and 2 weeks ago he was told he had local recurrence and Peritoneal Metastasis and he has been told he probably will have 3 - 6 months. I am not sure what to expect as I’m going to be the main carer . I work part time and I know there will be a point when I will have to have some time off. It all seems so scary. 

  • Hi  

    I'm sorry to read about your husband's prognosis and I can't begin to imagine how hard this must be for you both.

    Although I'm not a member of this forum, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    ((hugs))

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  • I realise this is an older post, so I do hope you managed to get some insight and that things are going as well as they can be in these awful times.
    My hubby had a whipple procedure in 2022 followed by 6 months of chemo but is now undergoing scans following excruciating pains in his stomach area.

    We appear to be back in the waiting game of scans and results and I too am seeking clarity for the future, what to expect and how do we plan going forward etc?
    i do think we have to just enjoy all the time we have and the fear of the unknown is actually what is scary.

    Sending best wishes for you & your hubby.

  • Thank you for your kind wishes, sadly he passed away 4 weeks ago.

    I feel your pain with the waiting for results and appointment etc. it is so hard.

    All I can say is make the most of every day your hubby feels well enough to do things. I hope the outcome is the best it can be.

    Reach out on this post if there is anything else I can offer from my experience.

  • I am so sorry to hear this & I hope you have a good support network around you at this sad time.

    Unfortunately, it is a similar picture here. His scans have shown that it has returned around the surgical site so he is looking to start chemo again.

    Was chemo an option for your hubby?

    Trying to stay positive but realistic. The next step is having that devastating conversation with our children. On one hand I want to wait until they finish school for the summer break but on the other hand I don’t want them to resent us later for not telling them sooner. Or even if we will have that long Cry

    Thank you for your reply, I really wish you all the best moving forward.

  • So sorry that it has returned unfortunately chemo wasn’t an option he was so weak as he had lost so much weight. I know it’s hard but if they offer him chemo please try to keep positive.
    It must be so hard for you especially with younger children ours are grown up and have children of their own. I think children should know what’s going on then it’s not as scary for them. 

    I hope you can manage to make some happy memories during the school holidays. 
    I am here for you and take care.