Hi there. Not new to Macmillan online as originally joined over 10 years ago but new back. My husband has stage 4 kidney cancer and in the interim years I have found a lot of support via a KC specific forum, but as he deteriorates and reaches end of life I am struggling to find anyone that relates there. Hubby has deteriorated a lot over the last year and in April we were told to start getting our finances in order. He didn’t want to know a timeline but our oncologist suggested he may have less than a year. 9 months on there have been ups and downs but the last month has been hard. He has been experiencing frequent nausea and vomiting - he is sick most days (often several times), although this tends to only be bile. He has also developed a worsening chesty cough but I keep checking his temp and no fever which is reassuring - he has a partial collapse of both lungs so the risk of infection is much higher for him.
I feel like I am living on the edge, constantly worrying about whether his symptoms are to be expected, or if they could indicate he is approaching his final weeks. I have no idea.
For those that have been through this, what are the worrying signs I need to look out for? He has already lost so much weight, has experienced skin discolouration and fatigue, struggles to get his breath, wheezes and has a varying appetite. With the amount of symptoms he already has I’m worried that I won’t recognise the point at which we don’t have much time.
So sorry for the vent - I am just despairing over what this year has in store he is only 35 and our daughter will be 4 next month. I appreciate this might be a little morbid, but after 9 months of feeling anxious over every little change I just feel like I need to prepare myself they only way I know how, with knowledge of what is to come. Thanks for listening.
