My elderly dad was diagnosed with terminal oesophageal cancer about 10 days ago. I am staying a lot with my parents, to support them. But already I sadly see deterioration in my dad and today he had what I can only describe as a choking/sickness episode when eating, which was so frightening. Until now he had been strong, but I saw him today, I believe, accept his fate, and now he doesn’t want to risk eating. How do we get through this at home? I’m in pieces. And can the palliative team make him comfortable through the worst parts that I now imagine could now come in the future. Sorry to be so graphic and negative. But I’m so scared for him.
It’s full of love so I think that’s the main takeaway from your posts . You can’t sugar coat the reality and it is going to be what it is; so having the facts in terms of what is happening for your Dad is sad but also helpful. Big hugs to you!
Dad had a bit of very thin porridge and banana today. Thought all was well. But now he is obsessed with his bowl movements and stuck on the loo. The nurse yesterday said he was not ‘compacted’ but dad is fretting about it.
The palliative team haven’t called. I feel totally unhelpful and a bit at a loss and also a bit anxious now. I don’t know how to help him.
Later today Dad had a very difficult time with his bowels. It is probably the morphine, not eating and inability to keep down laxative combined. I won’t go into details but he tried to resolve the constipation himself, he felt that bad. But he didn’t tell us he felt that bad. If your loved one is on morphine or feeling constipated, get them early help. Ask them if they are in pain or feel bad. I think dad was too proud and too worried to want to call the nurse. He was worried he would have to go to hospital.
He’s all clean now and in bed again. But he felt terrible earlier and a wonderful palliative nurse came out to give him suppositories. Which have helped. Maybe a bit too much. But we are coping. He was so happy to see and speak with the nurse. He feels better looked after.
The palliative team suggested he would now be better in the Hospice and they have referred him and he has a space. He is going by ambulance tomorrow morning. My mother and I will go with him. Mixed feelings of sadness and relief. But mostly sadness. However, dad is happy about it and says it’s the right time.
It hit my mum that it may well be the final time she goes up to bed with dad. She has coped well with this whole period. She has been, largely, cheerful for dad. I think possibly in denial a little, maybe, with some moments of dawning as to what is really happening. Perhaps it was her way of coping and getting through what has been a dreadful time. But it hit her very hard tonight.
But we all know that it is time for dad to be cared for by experts now and for us to support him there. It will be so sad to see him leave his home. The beautiful home he built and strove for, for us all. But he will hopefully, I really do hope, be in a more peaceful, pain-free and properly supportive environment. And we’ll be there all the way for him. ️️️
I am so sorry you are going through this, I lost my dad to the same type of cancer on 22 July this year :( no words can express the loss and heartbreak. You and your mum are there for your Dad and that’s all that matters. Be brave, sending lots of love your way x
Thank you for your comments. So appreciated. Dad had a bad night, poorly tummy and fell next to the bed trying to get up to go to the toilet. I got him up in stages and sorted him out and laid with him on his bed until early hours. Mum was happy to sleep in the next room. She is not very mobile and struggles herself. She had a good sleep. I am going to try to be philosophical as I can today. Dad needs support, probably more than we can now give him.
If anything last night was a sign that being in the hospice now is perhaps the best thing for both your dad and you guys. Every person is different towards the end and what care is required depends on the individual and it certainly sounds like your dad needs more support. You and your mum can provide the emotional support and love. Those last few weeks with my dad were really hard but the hardest part was watching my strong dad be demoralised by the horrible illness and just laying there. Sending you so much strength you can get through today for your Dad ! Always here if you need a chat/rant x
So today at 11am an ambulance arrived to take Dad to the hospice. Not an incredibly beautiful hospice, but the staff… could not fault them at all. He has his own room. We stayed for about 3 or 4 hours, mum was tired. We were all tired. It’s a real struggle, watching someone in such pain and discomfort.
I think Dad may have had an enema. That may help him to wee too, as bowel can impact on the bladder.
He told me he would miss me looking after him. I’ll still look after him as much as I can ️
I feel sadness but relief. The nurses were superb. Now for bed.
That must have been hard for you all, as you say some relief also which you should not feel guilty about. I had my first day back at work today and it was incredibly hard feel bad going back to normal when dad is no longer here :(
They do not prepare you for all this when the initial diagnosis is given so they, I hope your dad has a bit more comfort tonight least you an mum can rest knowing he has 24 hour care x
Big hugs. Thank you for that. Sorry about your dad. I do worry about how much we will miss him when he does leave us, and going back to work.
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