My relative has had a late diagnosis and is deemed too poorly for treatment.
I am dealing with it from a very lonely place as I am their child’s bereaved spouse.
I am floundering and a bit scared by all the meds as I just don’t want to do the wrong thing. I will speak to the district nurse again this morning.
they want to stay at home and I want to make that happen. The nurse said it will but I am so sad frightened and every other emotion I can think of I think right now.
sorry I just had to write it down
With my mum we have a specific notepad where all medication given each time it is given, so we can refer back to what was done when, while our brains are mush and we don't know whether we're coming or going.
I've also recommended Alexa/Siri/Google notifications if you have a smart speaker. When you take meds, set a reminder to then take them in 4/6/12 hours time so you don't forget or delay them. We have so many phone calls, visitors and things that need doing, it is really easy to lose track of time.
Hi, my granny wanted to stay at home and she did. She went into hospital but we and the hospital made sure she cam out to pass. They got a hospital bed for her and we had the best carers coming in four times a day to help. DN was on hand as were the hospice at home team. I wrote down when her meds need to be taken and I gave them to her but in the end she wasn’t able to take them anyway and she moved on to the just in case meds administered by DN
Thank you. I had my mum in law out of hospital and had the support of DN, carers and Marie curie nurse the last 2 nights.
she passed very peacefully where she wanted to be yesterday. I was glad to grant the wish to be here.
I’m sorry to hear that, I hope you can take some comfort from knowing she passed peacefully and at home xx
It is a big comfort as it was all she wanted since she knew she would not recover from this.
she had put everything in place to stop intervention
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