Comparison scan

Hi there

We are in a similar position. My partner was told in September that treatment wasnt working for his stage 4 lung cancer. He had an appointment for january to see the consultant and we too were confused that no scan appointment came through before.  We questioned it and were told that should his condition deteriorate then a scan could be done at that stage. Since September we have tried to get on and do as much as we can and make the most of life even though we dont know how much time we have. 

I thought the same as you about him not being worth a scan now but he was reasured that it was normal.  What his nurse did say is that at this stage a lot of it is mind over matter and having a scan to say that his tumours have grown a bit or a lot can have a bad effect on his mind.  At the moment he doesnt really feel any differant so we assume that the tumours havent grown any more and just get on with it.

He was prescribed steroids a few weeks ago and now has a better appetite and a bit more energy which maybe leads us into a false sence of security but if it helps a wee bit then we will roll with it.

We talked about his bucket list and we are working our way through it doing the more active thing now while he can.

I still find it hard to get my head around the fact that we dont know how long he has but then i try to be strong for him as i cant even imagine how he feels about it.

Make the most of each other now and do what you want and can, that is my advice anyway.  

Take care 

Liz x 

Thank you so much for your reassurance! 

We too are working g our way through his bucket list and have lots of plans but no longer become disheartened if he’s having an off day and stay at home with a box set instead. 

All the best with your journey, Take care! Xx