Just need someone to talk to...

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My Mum is currently on end of life, 

She has pancreatic cancer stage 4 and was diagnosed in November which has now spread even more.

My beautiful Mum was unable to have Chemotherapy due to contracting sepsis following a blocked bile duct PTC procedure, Because of the sepsis this meant her body was so weak chemotherapy wasn't an option,

Now the cancer is basically out of control, She is out of hospital and now safe and warm at home, but this is torture to see someone you love so much suffer, Mum isn't in any pain just is sleeping alot.

She is on some oral antibiotics now for the sepsis and had her pic line removed this morning.

I am appreciating every last word  / conversation  / touch / smile I have with her.

I just really don't think I am prepared for when the inevitable happens, I don't know what to expect, Don't know when it will happen.

I don't know how I am going to cope, manage go on.

Is it selfish of me to have these feelings about me not being able to cope.?

SleepyPensiveConfused

  • No - you’re definitely not being selfish at all.  You’re just being human and feeling exactly what everyone in your shoes feels in this awful situation.

     I’m going through the same feelings with my husband as he’s stage 4 bowel cancer which has spread to his lungs and liver.  He’s been referred to the local hospice for care as there’s nothing else the hospital can do.   It’s really hard seeing someone you love in pain and fading away.   I’m trying to make the most of the few weeks he’s got left, but also thinking about “afterwards” and how on earth I’m going to cope.  

    Just be kind to yourself and keep being there for your mum and make the most of the time left.  I get it’s hard to do this at times, but even watching a favourite film/listening to music/organising a visit from a friend will lift both of you.  In terms of care, the community nurses will be able to guide you through what to expect and answer any questions you have.  

    My husband and I go to Maggies regularly and they’ve helped us with the emotional side of things.  I’d definitely recommend support if you haven’t done this yet.   They can also help with some of the practical aspects such as funeral planning and wills.  My husband’s not quite ready to plan all the details for his funeral, but I know some friends who found it helpful to choose the songs they wanted played and decide on a coffin.  Sorting out the will has been helpful as that’s put my mind at ease financially.  Maggies also have living with stress course for carers which has helped me enjoy the time we have now, rather than let my fears overwhelm me.   It still happens of course and I cry every day, but I have ways of grounding myself (like taking a walk or run)  and keep going by taking one day at a time.   

    Take care x