Terminal

FormerMember
FormerMember
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My husband was diagnosed March 2020 with bowel cancer. To cut a very long story short, he had radiotherapy to shrink the tumor folliwed by an op to remove it. They then discovered it had spread to liver n lungs. He was put on chemo for 3 months at which point they scanned him. He was told that the chemo had not worked and he had Braf600 mutation. This is aggressive and fast growing. He was offered the beacon trial and after his 4th round had a scan. They said the tumors had shrunk, we were so happy and hopeful fir the future. But 3 week ago he got an infection in his spine which was compressing his spinal chord. He was admitted to hospital for antibiotics to be given introveniousley but had to stop the chemo until the infection was gone. He had a scan a couple of days ago and the tumors have grown. By the time the infection has gone, another 2 to 3 week they will be a significant size and don't think the chemo would do much good. He has said he just wants to come home now with pain relief and face the inevitable. I have to respect his wishes, but omg this is going to be so hard, it will break my heart. How on earth do you cope with this. I am scared of what is going to happen and just pray I have the strength to be strong for him. Has anyone else had to go through this, how did you cope. 

  • Hi. So sorry to hear this. My husband has prostate cancer which they thought they had cured but at his 12 month check they discovered not only has it come back but it had also spread to his lungs, liver, lymph glands, spine and ribs and that is was no longer curable. In January they  said he probably had 12 months  They started chemo straight away and we thought this was helping. as his PSA levels had come down significantly but now they’re going back up and have also discovered a rumour on his bladder. We have a feeling that at the next appt they are going to say the chemo is no longer working and to atop it. Like you I am fearful of what is to come - will I be enough to look after him (he’s already said he wants to be at home when the time comes) I have lots if family support but I still feel like I’ll on my own going through it. I really want to do everything that I can for my hubby (but am still having to work to as i am going to need my job afterwards)  and I’m scared. How will I deal with sewing the love of my life in pain. Sending you a virtual huh Pewter. I’m sure that we will both get through it one way or another. 

  • Hi, I am going through exactly the same as you Pewter. I am at a loss what to do, if anything, and my heart is absolutely breaking whilst I have tears rolling down my face typing this.  My husband has bowel cancer which has now spread to his neck, abdomen, lungs, liver and lymph nodes. This week we have been told that the all the chemo he has had last year and this year (3 cycles) has had no effect and the cancer is now progressing at an alarming rate.  The chemo has in fact ruined his quality of life and makes me wonder what was the point of chemo as it has had no benefit to him.  They are now talking about radiotherapy to try and target the extreme pain he is suffering. He is on morphine but the pain continues.  I feel the inevitable is upon us and I have no idea how to cope and this is why I have replied to your post to let you know that you are not alone and I completely understand your pain.  I appear strong in front of him & the doctors but behind the scenes I am totally broken.  Hopefully we can support each other through these extremely difficult times.  Best wishes

  • I’m so sorry you’re all experiencing the overwhelming emotions that come when another bloody wave crashes over you, you try to find your feet, but it’s hard but you keep trying and hopefully you get stronger…….I hope you do. 

    My husband was diagnosed colorectal Dec 2018, he’s had surgery and they’ve thrown all the relevant chemo’s at it but nothing has worked, he’s got mets to liver, lungs and abdominal area. He’s just finishing his last cycle of Lonsurf before scan but they’re not expecting it to work, then they’ll be nothing left for them to offer. He’s on zomorph and oramorph.

    I’ve researched and researched trying to find something to make a difference and am presently reading up on Joe Tippens and Scott Davis as right now we’ve nothing to loose. If you want links, pm me. 
    Like all 3 of you, I’ve become an accomplished actor, locking away my emotions…..and yes it’s bloody hard. 
    Sending you strength Hugging