Worst news

FormerMember
FormerMember
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Today I received the most devastating news that my amazing husband is now receiving end of life care.  He was only diagnosed 5 weeks ago. They thought it  was CUP but now say primary is probably kidney. It's very aggressive and has spread to several organs. He's currently in hospital with an infection and then he's coming home for me to look after him. I have family and friends support but where will I find the strength to keep it together? Our local hospice will care for him but visiting is restricted due to covid. I want family to be able to see him any time. I appear on the outside to be strong but I'm a wreck and am continually crying ( mostly in private) Please can anyone help me with advice. I am desperate to give him love and care but how can I be strong.  Absolutely the worst time of my life. X

  • FormerMember
    FormerMember

    Do you have facetime ? Make sure he has your photograph with him at all times, next to his bed. If you can communicate over the phone it will help. Don’t let him see you cry, he must believe you are coping and you are strong. I understand more from his point of view, i am terminal myself, only known for a week. I cry constantly, but in secret. X

  • FormerMember
    FormerMember in reply to FormerMember

    I am so sorry about your news. Its just awful. I wish you well. Sadly my husband died  this morning, peacefully with me and his nephew by his side. Thank you for sharing this. Good luck xx

  • FormerMember
    FormerMember

    This is similar to the position we have found ourselves in recently. My Dad came home from hospital to die at home.  My Mum had carers in to help but found it incredibly difficult.  Wd did not think he would still be here but 10 weeks later he is still with us. A couple of weeks ago he had a UTI and ended up in a hospice as he could no longer stand and was incredibly confused and was not eating or drinking.  He has now recovered from the infection and the hospice are discharging him. He is going to a care home which he is sad about as he would still like to die at home but Mum cannot manage. Luckily in the hospice we were able to visit for an hour a day and I believe this will be the same in the care home

  • FormerMember
    FormerMember in reply to FormerMember

    That's lovely that you had more time. Your Dad is very brave and you sound so supporting. Good luck for the future x