Sarcoma

Hello Hannah3011

I go to my husband’s oncology consultant’s appointments which happen every 2 months or so - no restriction apart from mask and waiting outside until called then straight in.  My husband waits in a special patients only area and when it is his turn phones me and I make my way in to the outer area and the consultant comes along  to escort me to her room.  I think your dad will be able to do this but perhaps not 3 of you.  Maybe your mum doesn’t want your dad there or maybe she hasn’t realised she can have her hubby with her.  Worth a chat with the oncology nurse regarding mum’s next appointment with the consultant or a chat with mum saying you think it possible.

For chemo my husband is alone although he texts me progress as I wait outside in the car or at home and then go and pick him up.  A dietician phones every month and the chemo nurse is available by phone 24 hours a day.  You call and leave a message and she/he phones back.

To reassure you about chemo.  All the staff are very kind and supportive.  It does not hurt at all.  Seemingly you cannot feel the fluid entering or anything.  Getting the cannula in can be a bit difficult although your mum is a veteran of that by now having had surgeries.  The side effects of chemo vary but some people are lucky and have few.  My husband has lost some hair and feels a bit sick but takes anti sickness tablets which work.  We have got organised so he watches a downloaded film on his iPad and reads car magazines and a free tea trolley with sandwiches and biscuits appears each session.  He is recognised and called by his first name and sometimes gets a chat with another patient on the chair next to him.  Quite jolly sometimes.

I am so sorry your mum is going through all this and you and your brother are so worried.  I hope the above reassures you a bit. My best wishes.

JaneyC