Incurable vs terminal ?

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My husband has been told his stage 4 kidney cancer with lung mets is non currative and treatment is aimed at reducing symptoms, shrinking the tumours and pro longing life, however, no one has said it’s terminal. Medically speaking,  is there a difference?

He hasn’t started treatment yet but will be very soon, and he is generally fairly well at the moment, still working, gone to play golf this morning,  so it’s hard to comprehend that this can’t be cured and he will die from this at some point, hopefully we have years, not months.

But how do you carry on being positive when you know the end result is always going to be an early death. ( he’s in his 40,s).

Emotionally, we are having good days and bad days, hoping things settle down once his treatment routine is established.

xx

  • Hi Gigi1973

    I am so sorry to read about your husband's Kidney cancer diagnosis, I can see that you have already joined the Kidney Cancer forum and I hope that you have been getting some support and guidance there.

    I am no medical expert, and my personal opinion may not be correct, but this is my understanding.  Non curative but treatable means that without treatment the patient would be terminal, my reason for saying this is, My Husband was diagnosed with incurable Oesophageal Cancer in May 2020, and in November when I had a private conversation with his oncologist, she advised me that if Dal had chosen not to have treatment, we would have already lost him. 

    This possibly is not what you were looking for as an answer, and it may be very different for your husband, the only people who can really tell you more are the professionals who know his diagnosis... what I do know however is that my husband is doing very well considering his condition, he looks like he will beat his suggested prognosis, and as long as the treatment works for him, he will be fine. 

    I understand all the thoughts that you have regarding comprehending that he may die of this at some point, that very thought consumed me for many months and often creeps into my mind now, when I am not keeping busy but that's only because I love my husband so much, and I don't want to imagine my life without him in it at the same time, I am aware that no matter how well he looks, he needs all the help he can get. 

    And that is exactly what your husband is going to get, all the help that they can possibly give to manage his condition and keep him as healthy as possible.

    Remembering that treatments are improving every year, we hang on to the hope that they will keep the cancer stable for a very long time and I truly hope they can do the same for your husband. 

    Thinking of you

    Lowe'

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  • Hi Lowe

    Thank you for your response. I think your explanation makes so much sense. It,s hard to accept that he is going to be on treatment for his cancer for the rest of his life and without it the cancer will win. 
    But we are staying positive and eager for the treatment to start. Just a bit apprehensive about the side effects and hoping they are mild for him. 
    I will try and keep the dark thoughts at bay and concentrate on making the most of the time we have, which will hopefully be a good few years yet. Xx

  • Hello Gigi73

    My husband is on non curative chemo - ie palliative.  After 2 or so cycles of chemo he got a ct scan which showed a reduction in size of the tumour.  A great result and inspirational to hack on with more chemo.  My advice is to ask your oncologist lots of questions so you understand what’s happening and what is ‘normal’.  

    it took me a long time to accept that chemotherapy wasn’t curative.  I asked about what happens if chemo stops working and got signposted to targeted therapies in a further attempt to extend his life.

    At the beginning both of us were in shock as chemo was suggested to improve symptoms but he had no symptoms so that was difficult to understand.  

    staying fit, eating well and staying in the moment seems to be the key.  Try not to focus on not how long but the now.  Still working and golf is impressive!  

    wishing you and hubby well.

    janeyC

  • Thank you janeyC

    So pleased that your husband has had a good response to the treatment. I t is, indeed, motivation to carry on.

    Our first cycle starts on Monday and we are hoping that the tumour shrinks as, literally just in the last week he has been experiencing some discomfort.

    I am feeling more positive and, like you say, focussing on the here and now helps.

    Best Wishes to you and your hubby

    xx