Young and Diagnosed

FormerMember
FormerMember
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Just wondering if there’s anyone else with kids in this group. We have a 4 month old and a two year old. I am so sad for everything my wife will miss. 
just feeling a little lost, I suppose and wondering if anyone can relate? 

  • FormerMember
    FormerMember

    This isn’t the same but my dad is dying and he has said what hurts him the most is that he won’t get to see my 8 year old son grow up. They are very close. It does feel like a huge injustice when children are involved because they will miss so much. We don’t have a big family so my dads loss will be so noticeable and I’m worried how my son will cope. 

    I’m so sorry you’re going through this and that your wife has to come to terms with it all. Keep her memory alive for them. 

  • We have a 3yr old. I have started buying birthday cards for my husband to write to our daughter. Feels so wrong but want her know how much her daddy loved her xx

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you Bookworm. I disappeared for a while as it was all getting a little too much. I really appreciate you reaching out and those words “Keep her memory alive” has really resonated. I’ve been taking lots of photos and videos. So thank you so much, precious memories. 

  • FormerMember
    FormerMember in reply to Toni78

    Oh Toni78, I am so sorry. How is your husband doing? How are you doing? 

  • How are you doing?

    At the moment my husband is not responding to  treatment so all a bit difficult.  

    im trying to keep everything together. Edie our little girl knows that daddy goes to hospital a lot and one of Tony’s symptoms means that he bleeds from his nose constantly so she is always telling him to wipe his nose. 
    I feel like I am constantly thinking about how to make memories but how can we???

    I got Tony a dictaphone for Christmas so we have his voice and we are planning to get a story recorded as bedtime is something we have always done together. 

    Last night they were in the bathroom together brushing their teeth and laughing and I had to walk away. The pain and realisation of what will eventually happen is too much isn’t it? 
    xx