Hi,
In October my mum (56) was diagnosed with stage 4 bowel cancer which had metastasised to her liver. The tumor in her bowel is enormous and the tumors in her liver are all over it so cannot be operated on. I'm 25 years old and I live with my mum. I'm an only child and she is my best friend. She was originally offered chemotherapy and was given a prognosis of 2-3 years with chemo, 6 months without.
Last week she was admitted to hospital and was told she had 2 weeks left to live unless she had an operation for a stoma as the tumor was creating a blockage in her bowel. She was ready to give up and didn't want the operation but she thankfully decided to have the operation for me as she knew I really wanted her to have it. The worst part is, the operation has only given her 6 months max and as she only had it 4 days ago, she cannot have anymore chemotherapy for 6 weeks and now they're saying that the mets in her liver will probably be so much worse in that time she may not be able to have anymore chemo. She also has really bad reactions to chemo and the doctors have had to reduce it to 60% most times which obviously isn't as effective.
My boyfriend moved in with us before the lockdown to help me care for her which has been a massive help but I'm honestly really struggling with coming to terms with all of this. I don't know who to talk to as I feel no-one understands my pain. I've had counselling sessions but it hasn't really helped and I'm so concerned that I don't have any coping strategies for now or the future if the inevitable happens.
This is my first time searching and posting this on the macmillan website so any advice would be greatly appreciated.
Hello Again
I hope you don't mind me replying to you here also.
I am so sorry that the initial prognosis for Mum has been reduced so, by the need for an operation. I fully understand the concerns re coping strategies, and can only try to reassure you that as an individual we all have so much more power and strength than we can even begin to imagine. Even when we are brought to our knees and feel deep despair and loss, somehow, from somewhere the fight to survive that, the keep on going when we may not want to and the acknowledgement that we will do whatever we can for our loved ones even once they are gone, will mostly keeps us going. I am thankful that you have the support of your boyfriend.
My husband is slightly younger than your Mum, we have children and grandchildren, so it is different for us in so far as the girls have each other. The human body is an amazing thing, and although there will be a delay in chemo there is still a chance. Once my husband started chemo, he went from looking and being very ill, to looking good and feeling better.. A different cancer, but with similar mets, focus is what keeps him going, focus, high anti-oxidant foods and medical treatment.
Don't lose hope just yet if you can, please hold on, we are here if you would like to discuss further.
Lowe'
Hello again,
I really appreciate the replies! They're helping me a lot. Every memory I have includes my mum in some way. She has always been so, so supportive. Although my dad just lives around the corner with my stepmum, I'm not as close to him at all. My mum is my rock and my best friend and I just really don't know how I am going to cope without her. She's so worried I'm in denial when actually I'm feeling the polar opposite of that. I really need to be more positive if anything!
She wasn't even going to have the operation last week... if not she wouldn't have been here next week so I'm glad she decided to have it for me. She seems to be coping well with the stoma but she has accepted she will die in 6 months. I'm still trying my absolute best to clutch onto hope of a miracle but I am also very aware that it's incredibly unlikely. My mum had such an awful time with chemo which has put her off having more anyway but I'm hoping the option is still there for her in 6 weeks post op. She is speaking with the oncologist tomorrow though to see what his thoughts are so I'm very nervous about that.
I'm really happy your family have one another. It sounds like they're supporting each other. It's times like this I wish I had siblings to share the load with so I'm really glad I joined the groups on here instead
Emily
So sorry to hear about your Mum and that you are having to go through this at your age and on your own. I’m keeping everything crossed for you that they can still do the chemo. Whatever time you have left with your mum just try to take each day as it comes, making lots of lovely little memories(doesn’t have to be any grand bucket list) and try not to think about the future too much- that’s what I’m trying to do because the thought of a future without my hubby in is unbeatable.
Keep talking too as its definitely better than bottling everything up x
Thank you. I'm really sorry about your husband. I noticed you replied on the other group too and it really is truly awful isn't it.
They seem to think the chemo that she had hasn't worked as the tumor had grown and there are so many mets in her liver. I'm still trying to clutch at some hope though. I've started writing a journal of what we do each day (starting yesterday when she came out of hospital) but labelling each day as 'day 1 day 2 etc) so I'm counting up the days not down. I have no idea if this will help me but it allows me to document the days and gives me something to look back on.
I hope you have some lovely times with your husband. I appreciate your lovely reply xxxx
I have started two journals. I have one that I put all the horrible negative stuff in (that I intend to throw away eventually) and I have one to put nice things in too so like you I will have something to look back on in the future.
Keep strong. We’re in this together x x x
I really like your journal idea Jillybean, thanks for sharing that
Lowe'
Hi Jillybean, That's a good idea. At the moment I'm just documenting the things we get up to each day, the happy and the sad but I may change to 2 journals. Since mum has come home from the hospital, a couple of days ago, I haven't felt as sad as we've just been spending time caring for her, watching TV, reading and just enjoying conversation. She's napping quite frequently though so my boyfriend and I have been trying to do home workouts as something different to do whilst she's asleep. I am getting more concerned each day though that the oncologist is going to say there is nothing more they can do for her. He's next contacting her on the 25th I believe so keeping everything crossed for then. Do keep me updated with your situation, lots of love xxx
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