Since my husbands initial diagnosis that his ocular melanoma had spread to his liver and bones we have not been able to catch a break!
high liver enzyme levels (ALT 135) in December meant a delay in immunotherapy of 8 weeks but after a course of steroids we were good to go for treatment cycle 3 (combo of ipi/nivo). Early scans showed only a partial response with no growth in the bones but the liver was not responding... Next plan, finish 4th cycle ipi/nivo and cyber kniffing for the liver. After delaying treatment 4 to allow for a little trip abroad, we returned this week to have the last combo treatment... or not! Next curve ball, liver enzymes now 377 and he has been admitted to hospital on IV steroids with treatment stopped. The medical oncologist team have said it is unlikely he will return to immunotherapy.. I thought this was our only hope, has anyone else out there been offered other treatment after this has happened...
Feeling the strain of this all now... but holding on in there x
Hi RunnerChick
It sounds like you and your husband have been through so much so I can understand why you're feeling the strain.
It might be an idea to also post this in the secondary liver cancer and secondary bone cancer groups where you'll hopefully find others with similar experiences. You might also want to join and post in the eye cancer group and see if anyone there can help with what treatments they've been offered.
Sending a supportive (((hug)))
"Never regret a day in your life, good days give you happiness, bad days give you experience"
