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Hi  and welcome to the online community

It sounds like you're a very caring person and your friend is lucky to have you.

I don't have any experience with this type of cancer but I noticed that your post hadn't had any responses. I typed 'paragangliomas' into the search bar in this group but your post is the only one that mentions it. This is probably because it is so rare.

You have had a reply from Carole, a Macmillan Information Nurse Specialist, to your post in ask a nurse with lots of useful links and advice. I don't know if you've seen it but, if not, clicking here will take you directly to it.

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