Hi, thank you for allowing me to join, I am wanting to get some advice and gain some kind of knowledge and understanding about my mums condition. She has declined palliative chemotherapy so would like to understand how this will progress and the journey of symptoms and progression we will go through. X
My Mum also has sclc. She was diagnosed December 18 with it in her lung and lymph nodes and had chemo and radiotherapy. She has been stable from June 18, but we found out yesterday that its spread to her liver. They have offered her chemo, which she has accepted but it has only a 50% chance of success and we dont really know what they mean by success. Otherwise they said we are looking at about 3 months. She is extremely well at present but the oncologist said that she would very soon start to feel pain, lose appetite and feel sick. Also weight loss.
Sorry to hear this, my mums had already spread to her liver when we found out so declined palliative chemotherapy. We were give prognosis September. She has good days and bad although bad are out weighing good at present. She gets tired really quick can sit and nod off all throughout the day she has loss of appetite although some days manages a meal. She is on alot of pain relief and now has a viral infection which is knocking her back a little. I feel it's just so tough not knowing were u are from one day yo the next and not knowing what to be aware of the symptoms and how bad it can get x
Do you use Facebook at all. There are some good groups on there
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