My mum has just recently (Oct 19) been diagnosed with stage 4 lung cancer with rib, scalp, lymph nodes, pleural andiver Mets. After what felt like forever waiting for scalp biopsy results we have just been told that they now cant work out what her primary cause cancer is and that she cant have immunotherapy and other tablet form treatment . Her poor liver function also rules out chemo. As well as this they have now said there are brain Mets and a scan showed some abnormalities in the common biliary duct and colon. They are suspecting it's also cancer (either Mets or a separate cancer) but are reluctant to investigate as it wont beneficial so we are told all we can do is manage pain and symptoms.
We were told this is rare and considering how widespread the cancer now is she looks really well in herself they wont offer a timescale despite this being something she wants to know.
Has anyone else experienced anything similar can share their experience?
Thanks x
Hi, so sorry to hear what you are going through too.
She has even suffering chronic pain in what she thought was her shoulder and ribs since June, countless appointments to the GP and she was told that there was nothing wrong with her.
When she got her diagnosis we were told the primary was the liver however they are now undecided. The scalp biopsy results came back with mucinous adenocarcinoma which they said was strange as this is normally associated with areas such as the colon.
She was admitted to hospital over the the weekend with horrendous stomach pain, an abdominal CT showed some abnormalities in the bile duct and colon are but due to everything else they are reluctant to investigate but do suspect it's some cancer.
I just feel so lost and confused. We were thrown into this awful world of cancer without knowing what to expect or where to go and it's so heartbreaking so watch it destroy a family like it does 
