Hi everyone,
I apologise, I have never used the Macmillan website before so I'm not too sure on what to do but here goes:
My name is Ellie, I am 18 and currently at University. My dad, Colin, was diagnosed with Non Hodgkins Lymphoma when I was 14 years old, in the following four years he was diagnosed with Kidney Cancer and Small Bowel Cancer that spread to his Liver. This was a very tough time for me, especially since I could not find any support for Young People affected by Cancer in my area (Gloucestershire). My dad sadly passed away in April this year. He was my hero, and an absolute legend, and his death damaged me a lot.
I have decided to set up my own Charity, for Young People in Gloucestershire who's lives have been affected by Cancer. The idea is that there will be regular Support Groups - that use creative outlets like Music, Drama, Art and Sports to express feelings. Hopefully, it will be a welcoming environment where people are encouraged to discuss how they are coping, but do not feel like they have to share. Merging "Youth Club" and "Support Group" to bring individuals together with similar experiences.
I am already contacting other Charity's in and around Gloucestershire, and have spoken to some Music Companies as well. Theres only one problem. I can't think of a name.
I like the idea of an anagram, but I can't seem work one out. I also liked the idea of it having a personal connection to me but all I can think of is the Footprints in the Sand Poem, Robins (When a loved one passes they visit you as a Robin) and the book "A Monster Calls".
If anyone can think of anything, please suggest it (I also like just a simple name like 'Hope' but a lot of Charities have that name, something similar to that would be good - I would like it to have a ring to it)
Hope someone can help, thank you for taking the time to read this!
Dear Ellie, first of all condolences to you for the loss of your father. I am incredibly impressed that you want to give back to your community and have no doubt you will be providing a service which will be empowering to young people in your position. As for a name, I have been wracking my brain and my suggestion is “light reflections” I am sure you’ll get much better ideas but I wanted to contribute something. I wish you well in your endeavours, your dad would be so proud of what you are doing.
best wishes
jane
Hi Ellie. I am so sorry for your loss and sorry that you have had to go through all of this at such a young age. How wonderful that you want to give back. My husband has cancer and between us we have 4 children 13 (today!), 11, 9 and 7. You are right, there is a gap in the the support available for children affected by cancer. I really believe too that this is a much needed service.
There is a charity local to us (Cambridge) called Stars that was set up to help children facing grief and bereavement https://talktostars.org.uk. Sadly, funding has meant that they can now only offer support to children after bereavement. I did find out that our council offered music therapy for children and I have approached them but to no avail. The school were also stuck with how to help. We have exhausted our search for support. It’s so frustrating! The youngest 2 now have therapy sessions with a counsellor that we have sourced. I would love to find a group for the older 2.
I do know that this is something on the Maggie Wallace agenda. We have attended family days at our local centre and they do run an art group for children affected by cancer. It’s more a case of finding another family with similar aged children and facilitating something ourselves.
I wish you every luck with this venture and hope it is something that takes off nationally. I would love to help facilitate this but not in the right place atm. In the meantime will start thinking of names for you.
Best of luck xx
Hi Jane,
Thank you so much for your reply, I love your suggestion! It definitely has that ring to it that I was looking for. I was kind of worried that if the name explained what the Charity does then it might intimidate some young people.
I hope you don't mind but I read your 'About Me' section. You are an extremely strong woman, and I have so much respect for you, carry on leading a happy life!
I will keep this page updated when I decide on the final name, but your suggestion is one of my favourites at the moment.
Best Wishes,
Ellie <3
Hi,
I am so sorry to hear about the circumstances you and your family have been put under, and I'm sorry that there is no support available to your children. There does seem to be a gap in most areas for 10-25 year old who's lives are affected by Cancer. Creative subjects really helped me when I was facing it 'alone', and the art group you mentioned sounds really helpful to you and your family.
Thank you for being so supportive, its really inspiring to hear other people so passionate about this idea as well, and to know that its not just Gloucestershire that needs to 'fill the gap'.
Best wishes to you and your family, and a MASSIVE Happy Birthday to your 13 Year Old (now a teenager!)
Thank you so much for your reply,
Ellie <3
Dear Ellie, thank you for your kind reply. I will look out for your updates and wish you success with your project and all you do in life.
best wishes
jane
Hi Ellies
I think what you are doing is a wonderful thing. It is hard enough to try to deal with everything that Cancer brings as an adult let alone a young child or young adult.
I would like to suggest “Ellies” as the name due to the fact that it is your user name but mainly that Cancer,emotions,grief etc are often “the elephant in the room” that no one talks about.
I wish you all the best going forward and providing young people with the care and support that they need.
Hi Ellie
What a wonderful thing you are doing. There are massive gaps in cancer support and it sounds like you will help.
How about you and your father's name. Call on Ellie?
Best of luck
Hi Ellie,
Sorry to hear about your dad but as everyone has said what a wonderful thing you are doing. As he will be with you with this, as Gina said why not use both of your names, how about COELLIES or COELYS
I wish you well in all you do
Hi
It really is quite an ambition to have to set up a charity covering the county of Gloucestershire. Is it your intention to have one place for the youth to meet to express their grief or is it your vision to have a meeting place in all of the 7 districts of Gloucestershire. It's a very good idea to have a support group as a youth group and if successful will be very worthwhile and a great place for the young to meet to express their grief through different by using their creativity.
My suggestion for the group name
Admas at the Glos
Where do I get my suggestion taking your vision of 4 outlets for the youth to Express themselves in
Arts
Drama
Music
And
Sport
Which brings in some of the 5 stages of grief to become
Anger
Denial
Memory
Acceptance
Support
Which brings me back to
Admas at the Glos
I wish you well with your ambition and hope that you are successful in getting this off the ground by sourcing many backers to help you fund the project with local talent in Art Drama, Music and Sport volunteering to bring together the 4 activities.
As suggested you could speak to our friendly support team for advice on
0808 808 0000
any day of the week from 8 am to 8 pm.
You could ask about a Macmillan grant to see if your project would be eligible for one and there is always the National Lottery you may be eligible for a grant from their good causes awards scheme.
If it is your intention to go county wise it might be a good idea to find a local celebrity that the youth could relate with to be a patron of your charity, everyone likes to see a household name on the letter heading and often inspires businesses to be generous in their support.
You could also think about seeking funding from one of the online funding appeals.
Looking forward to reading further reports on your project in the future
Ian
Hi
Thank you for your amazing response, I'll keep this page updated when I eventually decide on a final name. One of my friends actually suggested the same name!
Thank you, best wishes <3
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007