Relapse

Hi, 

My husband was originally diagnosed 5th April 17 with a large mediastinal  mass (non specific - Non Hodgkin Lymphoma). He had 8 rounds or RCHOP chemotherapy. In Jan 18 he was in remission.  

In July 18 - CT scan showed it had grown, PET CT scan Aug 18 showed positive cancer uptake again RELAPSED No1....    End Aug 18 he started RESHAP 2 lots with a autologous STEM CELL TRANSPLANT Dec18 out Jan19.

Nov 19 - Jan 19 - 3x colds and a few consistent coughs. Referral for CT in Feb20 and meeting March 17th and it’s back RELAPSE No2....  we were told originally treatment can’t wait and must start straight away and if he wasn’t to have treatment it could mean months (but they say he’s not terminal?????) he will need another biopsy & PET before doing anything or discuss with SCT. They are trying to get a more specific type of cancer type! The biopsy has been sent to 3/4 different hospitals for pathology/histopathology to have a look? We still are waiting for biopsy results. We know the Covid risks but feel the risks of non cancer treatment weigh about the same! 

questions:-

Anyone else had original diagnosis and 2 x relapses in such a short period of time?

Anyone else not able to have radiotherapy (due to the mass location)? But now it’s an option because chemotherapy is too risky due to Covid 19?

If cancer treatment is delayed, how long does it have to be delayed before the consultants let patients know what is happening or going to happen? 

Why are consultants so reluctant to commit to a terminal diagnosis - what are they so scared of? 

Sorry about all the questions. 

Diamond Girl