Hi I'm Dave and I'm looking for advice on neuropathy .I had a stemcell transplant in October and got the all clear in late January. I have suffered with neuropathy in my lower back and legs ,I am having reflexology and I'm also booked in for acupuncture .I have my legs massaged everyday. I know it's going to take a while but if anyone can give me some advice I would be grateful, also since coming off medications including oxycodon I'm finding it very hard to sleep has anyone had these side effects any advice would be appreciated, regards Dave
Hi again Dave Geordiedancer it sounds like you are doing all the things that are available out there to help overcome your neuropathy…… after my second Allo SCT I had very bad neuropathy in my hands - I used 2 hand sized rugby stress balls and this helped to encourage my nerves back into life…… but this took 2 years.
Sleep can be a mystery…… a year before my first Allo SCT I developed medically induced hearing loss due to medication used for my Lymphoma treatment. Right Ear 85% loss with remaining 15% a muffled sound with continuous pulsing 24/7 and Left Ear 50 – 60% loss + Tinnitus and now have 2 hearing aids….. in the early days my GP gave me mild sleeping meds to help me tune out the noise now I have no real problems,
A sleep workshop may be helpful - so do check to see if you have any Local Macmillan Support workshops in your area, do also check for a local Maggie's Centre as these folks are amazing and do run workshops.
Thanks Mike ,much appreciated you are an inspiration 
