To recap, I was doing fine at 2 years plus post-transplant. At my recent outpatients, they didn't like my blood counts, so I was called in for a bone marrow biopsy. The full results aren't back (they don't have the genetic profile yet, if that is the right term) but there are leukaemia cells there. The plan is that I go back in for 4-6 weeks and have some 'mild' chemo and some lymphocytes. They will see how I do on that, though they have to check first if I am fit enough, so ECG on Friday. Alternative is twice weekly visits to outpatients for maintenance treatment - I really don't fancy that at all. I felt consultant was cautiously optimistic that I wouldn't have to do the whole SCT cycle again.
Lots of packing to do.
Tessa
Yes Tessa, this can be very confusing as all these haematological issues can have long reaching effects.
I have lived with Thoratic & Lumber Spinal Osteoarthritis for a number of years and it will be hard to differentiate between this and treatment.
My muscle wastage was rather bad and my legs would be in a lot of pain......... but the longer I went away from treatments and meds this all improved so let’s look for you and your team find the way to deal with this xx
Ah Tessa, your journey full of mystery continues, let’s look for your team to find the best and most effective route to navigate you in the right direction ((hugs))
