Day 100 today!

Oh Kirsty, I think you may well get the Gold Medal..... the prize that no one actually wants ;) but  at the same time, this such good news.....your own bed!!! and darkness with not buzzers!!!

High 5 for the BMB and let’s look for the FLT3 to be just what you want.

((hugs))

Thanks Mike! I'm actually missing my hospital bed cause they got me an air mattress and my lovely expensive memory foam one at home feels like sleeping on a rock!

Lol - first time I have heard this said about hospital beds....... time for a change?...... no, you will get used to it xx

Hey, congratulations getting home! I guess you probably have got the record for the longest stay but great news about the bmb result, let’s hope the other test is good too!

hugs xxx

Hi Kirsty, good to hear you’re eventually home- and it’s onwards and upwards from now on. Your little girl will be ecstatic to have her mummy home. 

Take care 

Judith 

Kirsty,

I am so so pleased to read this! I had been really worried as I know how tough things were the last time you posted. So pleased you have got back home. It might still be a long road to get to where you want to be, but anyone who has spent 98 days in hospital is one tough cookie, so you’ll get there, one step at a time (even if some of them are backwards, you’ll still get there in the end!)

Greg

Thanks Greg! Still carrying on with the ECP and still struggling to keep food down some days but just like you say one day at a time, even if it feels like I'm going backwards sometimes!

The backwards can be brutal. More good days than bad!