smart syndrome

FormerMember
FormerMember
  • 3 replies
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hello

i have asked before  but thought i would ask in this group

my wife has been diagnosed with smart syndrome a rare after effect from radiation treatment

not a lot on google etc just wondering if anyone has also been diagnosed with this

it gives symptoms of a tia and or epilepsie

  • Hi 

    Sorry I can't offer you any experience of this :-/

    SMART syndrome is so uncommon you may get some advice/info if you placed this question in this Ask a Nurse area as well as this group.

    Was this due to head radiotherapy or sclc ?

    Hope you find some answers, sounds scary, G n' J

  • FormerMember
    FormerMember in reply to Dreamthief

    it has been diagnosed by a neurologist who seems to think it could have be brought on by by pci to the brain 

    we have a 6 month meeting at christies next week so asking the question

    we have asked macmillan but due to rarity they do not know much

  • FormerMember
    FormerMember in reply to FormerMember

    just an update

    pam has been diagnosed with smart syndrome and put on an epileptic drug to help combat the attacks

    it is very rare 5 years post treatment of pci but please dont let this stop you having it if offered