Hi
My husband has just been diagnosed with myeloma, I know there is a long road ahead as he needs chemo and stem cell transplant, he has fractures in his spine also. He has a pet scan on monday and another heart scan tomorrow cos there was something wrong with the scan he had. Has anyone else been thru this and knows the process of how the stem cell transplant works and how long it takes, I know everyone is different but I need to know at least a little about it so I can help him thru this. I am doing my best to be strong for him I just need a heads up on how it all works so I can be confident in what im saying to him, his consultant is wonderful and does explain things but I need to know the it's and outside so I am prepared. I hope that makes sense as at this moment in time i dont think im making any sense as like others its a road ive never been down before, any advice on how to get him thru this would be much appreciated.
Hi Mrsg and a warm welcome to the Macmillan Community but I am sorry to hear about your husbands diagnosis.
I am Mike and I help out around our blood cancer groups.
I know from experience having been on my cancer journey for over 26 years with two very rare, hard to treat types of Non Hodgkin’s Lymphomas (one incurable)…… including 2 Allograft (Donor) Stem Cell Transplants……. Asbestosis and Prostate Cancer that navigating this journey can be such a stressful and challenging time but talking with and getting support from people who have walked or are walking the ‘exact same' treatment journey, be it as a patient or caregiver can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you look to join and post in our dedicated…….
……. support group.
This group is a safe place to talk to some great people who have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
To connect with the group click on the “Bold Link” I have created above …… then once the group page opens click in the [Black - Click to Join - Banner] that appears at the bottom of the page and this will then confirm that you have joined the group.
When you are ready……. you can introduce yourself by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
