New to the group

1. Hi Sand, i’m so sorry about your husband. My Dad has recently found out that his cancer is back in his lower jaw, his official diagnosis appointment is next wednesday. The mornings are definitely the hardest and I wake up crying every day. I’m very irritable and take it as personally offensive when someone tries to talk to me too early in the day before i’m ready. i try and purge the tears and get everything out so I can get through the rest of the day and not take it out on everyone. I don’t exactly know how to be and sound positive but I try and hide my true feelings from my Dad so that at the very least we can make some more memories - and i know how hard it is to keep working, but it’s great for compartmentalising, i know it feels like more pressure but i think it actually gives you a break to some extent. try to avoid thinking about the future for as long as you can; it will still be there when it’s time to cross that bridge, but now is fleeting and however painful it feels now you’ll miss it afterwards. you can do this, you owe it to your husband now and to yourself in the future x

Hi sand and a very warm welcome to the Macmillan Community but sorry to hear about your husbands diagnosis. 

I have lived with a different type of incurable blood cancer for over 24 years so I understand that is challenging and stressful time for everyone involved but getting support from others who are dealing with the ‘exact same' cancer type and support challenges will help a lot.

The Community is actually divided into dedicated Cancer Specific Support Groups (Discussion Rooms) so can I recommend you join and post in our dedicated Myeloma support group. This is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.

It will be an emotional time supporting your husband so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions, you may also benefit from joining our dedicated Carers only and Supporting someone with incurable cancer support groups where you will connect with others navigating the same support challenges.

To connect in with a group click on the “Bold Italic Links” I have created above then once the group page opens click on “Click to Join” when the black banner appears or “Join” under “Group Tools” (this all depends on the device you are using)

When you are ready you can put up your own post by clicking “+new” or “+” in the top right next to the group title. You can copy and paste the text from this post into your new post.

The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

Do get back to me if you need further help navigating the community but in the meantime all the very best.

thank you so much for your kind words and honesty. It has helped me and I empathize with your Dad. x

Dear Mike, Thanks a MILLION for your information and the links. I have been trying to find support for a very long time but it is very timely I received your reply today. I have used the support line many times but sometimes you need support outside those hours or just want to write thoughts down and see how others respond.  I will try out the links later on.  Thanks again.   Appreciate the warm welcome.

Hi sand navigating the blood cancer world can be ever so challenging so it’s good that you have reached out to the community.

I see you have joined a few of the groups I have highlighted but do also join and post in the dedicated Myeloma support group as there are a few folks in the same position as yourself in the group…… at times you need to talk with others on the exact same journey as living with and supporting someone with Myeloma is rather unique ((hugs))