Hello,
I was diagnosed with stage 4 melanoma in February 2021, it’s spread to my lung. I started dual immunotherapy at the end of February, had cycles 1 and 2 without issue, then developed colitis so missed cycle 3 as on steroids. Due cycle 4 tomorrow so definitely anxious that the colitis kicks back in but trying to stay positive. Steroids have been horrid (feeling dizzy all the time) so am keen to get off them! Not long now.
Interested to hear from anyone in the same or similar situation just to share stories :-).
N x
Hi NinnaMarie and warm welcome to the Macmillan Online Community although sorry that you had to find us and especially sorry to hear about your diagnosis.
A cancer diagnosis can be challenging in so many ways but talking with others who are walking the same type of cancer treatment journey will help you navigate this difficult time.
The Community is organised into cancer specific support groups so can I recommend you join our supportive Melanoma and Lung, secondary cancer groups as this will be a good place to connect with patients and families navigating the same type of cancer treatment journey.
To join a groups just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens.
You can then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
To find information covering diagnosis, treatments and pages covering most types of cancers can be found on our Online Information and Support Section.
((hugs))
Hi NinnaMarie and a second welcome to the online community
Please do follow Thehighlander's suggestion to join us over in the melanoma group as there are quite a few people there currently having immunotherapy who will be happy to share their experiences with you. Clicking on either the link I or Thehighlander created will take you straight there.
I'll keep an eye out for you and I hope today's treatment goes well.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Great news 
"Never regret a day in your life, good days give you happiness, bad days give you experience"
