Acute lymphoblastic leukemia

Hi  

Welcome to the ALL forum.

I am not currently going through treatment as I was diagnosed in 2012 and then had a Stem cell transplant in 2013. 

When I had my treatment I was on the UKALL14 trial which has left me leading a very normal life. Happy to try and answer any questions you have. I would imagine someone else will come along soon and reply who is currently undergoing treatment.

Hi thanks for getting in touch. How did the treatment make you feel and the side effects? Im feeling awful today very dizzy and i feel like i can’t concentrate, thank you

Hi

Sorry to hear that you aren't feeling good today.. nothing worse than dizziness. what part of the treatment are you having?

During stage 1 of treatment I was ok.. Stage 2 I felt dizzy and sick and really tired particularly with the intrathecals. Stage 3 was ok although I did react to the PEG asparaginase which wasn't fun.

Try posting in the ALL forum as well. You can navigate there by clicking HERE and then pressing the +NEW button you can start a new conversation. You can copy and paste the content form your original post to save retyping it as well.

I agree, aswell as dizziness i feel really washed out and tired. I am currently on the consolidation schedule and then I believe it’s maintenance after

Hi

Hopefully the dizziness and tiredness will pass but perhaps speak to your team and see what they think. Could your Haemoglobin be a bit low and you need a top up? I had a few even post SCT.. 

What is sct?

Hi 

How are you feeling today? SCT is stem cell transplant. You can read about my journey with ALL by clicking my profile here paul1969

I had bloods taken yesterday they were abit on the low side but I feel okay today just very tired not sleeping well at night