No more treatment

  • 23 replies
  • 20 subscribers
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Hello again. My treatment stopped 3 months ago. I was in a hospice for a few weeks, and have been at home ever since. Is anyone else in my situation of no more treatment?

I have to be in bed most of the time due to problems with the base of my spine. The doctors seen to agree I could be like this for months. 

  • Sorry to hear this Lucy, to have to be in bed all the time must be frustrating for you. I hope you have some good reading material and things to do and are being looked after. 
    Jac x

  • Hi Lucy,

    Sorry to hear your news. I was aware you hadn't been posting for a while. Do you have to be in bed, or could you use a recliner chair? Are you in your bedroom, away from the rest of the household, or is your bed in an area where you can be more in the 'centre' of things? I do hope you are managing to occupy yourself and are being well cared for.

    Sending you a virtual hug!

    Candysmum

  • Hi Lucy Locket

    Sorry to hear this, and i do not have any  useful answers for you, though ii am glad, you popped in, i   i had been asking regarding you, though no one came back.

    I think Candysmumhas given you a few good answers, xxx

  • Hi Lucy

    So to hear you are unable to move from your bed, I hope you have plenty of people around you, I think you have been given a couple of good suggestions. I hope you are getting the support you need.

    We are always here at the forum if you need to chat.

    Take care for now 

    Donna

  • Thank you. I am struggling with boredom as there is little I can do and reading and concentration is hard. I have too much time to think.

    Is anyone else not having treatment anymore?

  • I stopped posting because I was told I had a few weeks left, due to rising blood calcium levels. That's why I was in a hospice. Then my levels went down and stabilized. So I went home to wait.

  • Aww Lucy :-(  big hug.  

  • FormerMember
    FormerMember in reply to Lucy Locket

    Hi  

    Sorry to hear this, it sounds like a frustrating situation. I hope you are comfortable and are being looked after.

    A x

  • I am comfortable, just scared.

  • No words but I’m thinking of you lovely. Sending a hug and peaceful, pain free vibes xxx

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