Morning all.
Just want to tell you all my story.
Had 3 weeks running around Thailand in January, amazing. Came back and started with toilet trouble, went to hospital, had all test and found out I had a large tumour in the rectum. Was told I would have radiotherapy and chemo to shrink the tumour before removing it. I was advised to have a stoma bag before treatment. When doing the stoma op, they found my stomach lining was covered with what we know now is cancer. So now I am starting on my journey of palliative care. Not sure on what to expect, one day at a time I suppose.
A warm welcome Jammynammy - love your profile name!
You will find this forum to be full of lovely kind people who have helped me immensely over the past weeks . My cancer is very aggressive and I’m currently about to find out my next treatment plan - in the meantime I try hard to live in the moment and do as much as I can whilst I still can. It is all such a shock and my journey too although only 8 months has been a wild rollercoaster so far
One day at a time as you say helps me manage and finding the joy in simple things
Hopefully you have some loving family/friends around you but here you will find those who can fully empathise
We do have some great chats too !!
Lucy xx
Thanks for taking the time to reply. Sorry to hear what you are going through, and hope your next course of treatment is kind to you. In the meantime live life to the full. That's what I aim to do. X
Hi and a warm welcome from me too. The worst part for me was the initial shock and numbness of the diagnosis and the raw emotions that followed. Now that that has all died down and the treatment routine has been established, I feel more in control and have learned to cope fairly well on a day-to-day basis. Do you know what your treatment options are? In January, after radiotherapy and chemo, I honestly didn't think I would be sitting in the garden after mowing the lawn. But here I am and planning to go to Thailand in October. Where were you by the way? Anyway I wish you all the best and come on here whenever you need to or simply just to have a chat.
Patrick xx
Hi Jammynammy
I'm sorry you have been given your diagnosis.I have inoperable stage 4 esophageal cancer with liver mets.At first when I was told I'd be on the Palliative pathway I thought well that's it then.Id just got a second cocker spaniel puppy... after alot of thought Really bad timing!
But as time has rolled by I have come to think Palliative isn't Terminal and therefore my new state of being is living with cancer.Im about to start Chemo and targeted therapy with Herceptin....it could shrink my tumours and give me a few more years and that would be grand.Scout the puppy is going to his forever home in August but I'm good with that.
Time enables you to put things into perspective.Hope you'll post us all regularly,they're a great bunch on here very experienced, friendly and fun.
Liz x
You will love Thailand. We flew into Bangkok, sleeper train to Chiangmai, flew to phuket, speed boat to krabi then flew back to Bangkok. Amazing.
I have had 1 course of chemo and tablets. I start this week on panitunumab which is through intravenous. This is every 2 weeks. Fingers crossed it goes OK.
What treatment have you had and how is it going?
Good luck with everything xx
Hi there. I must admit palliative care scared the life out of me. I too thought my life is over. I'm still struggling to get my head round it at times. Some days are harder than others. My wife so wants a puppy. Hope everything goes well with you xx
Hi JammyNammy a warm welcome to the group no one 'wants' to join but after you do, you find great support as we are all in the same boat although with all different types of cancer!
I am pleased to read you have exactly the right attitude to carry you through. I do hope you will come on and chat whenever you feel like it. There is always someone here to chat to. I am well passed my sell by date given at the start and there are lots here in the same position. Yes one day at a time is the best way.
Love Annette x
Hi Jammynammy
Hello from me too! I'd just like to join with Annette in saying that a 'sell by date' is only a guess. Today is the 3 year 'anniversary' of my being told that my stage 4 cancer, found by chance, is 'palliative care'.
Three years of ups and downs, but I'm still here to tell the tale, and feeling well. Don't despair! It is not always as bad as you might think, and hope is free.
The advice of living each day as it comes, making the best of each day is really helpful. I hope you do keep posting and sharing in this forum....you'll get lots of empathy and support here from a great bunch of people.
xxxx Kate
Well it's lovely to read a thread where everyone is so positive which is Great , I believe it really does help. I have been told my exist will be quick and am on the time line now , But stuff that I aint going anywhere yet , I started a course of steroids only for 10 days and finish today. It's like a new leases of life after 9 months of being ill from immunotherapy. Literally could only function for an hour or two a day , Now I am buzzing around like a wasp at a BBQ . My advice is do whatever you want to do now while you still can . I choose not to travel as to ill on and off , but I am enjoying the small things in life , Like being able to eat and wipe my own butt etc , We all have to go at some stage anyway .Its just some of us are going early lol All the Best Minmax Spin out in the convertible and cream cakes and some nice meals from the shops planned today
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