afternoon all, I have HCC and was on immunotherapy. due to side effects that had to be stopped. am being offered lenvima but after doing research I am considering not doing it due to teh very serious side effects it can cause. my hospital team have never had any patient that has gone this way as options. anyone out there who has done both ?
Hello dancingqueen
I'm Steph from the Community team, I hope you don't mind me popping in here today.
I noticed that you were having trouble finding people on a similar treatment path after posting here and in the liver cancer forum. I'm sorry that you have such difficult treatment decisions to make and I hope that there's something more we can do to support you.
Although they have a different diagnosis to you, I wondered if it might be helpful for you to connect with AuntieT as they mention Lenvima in this recent post and are a member of the living with incurable cancer forum.
I'd also encourage you to contact the Macmillan Support Line so they can talk things through and investigate further support options for you. Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat.
You might also find additional support through these NHS information pages and resources suggested by Cancer Research UK.
I hope this is helpful, but if you would like any further support, please do not hesitate to reach out to the Community Team at community@macmillan.org.uk
Best wishes
