I 'm 80 and last year I had treatment for stage 3a cervical cancer, (cisplatin chemo and radiotherapy plus brachytherapy). The next scan came back clear of cancer and I was very relieved, but not long after I started bleeding again and a further scan showed it had come back in the same place. A pelvic exenteration was discussed but it was decided I would probably not survive this drastic, major op at my age. I was told I might have a few months, up to 2 years left as my cancer was now incurable..
I asked about immunotherapy and after they checked my old biopsy, it was decided it would not do any good. I have a phone appointment with my consultant in mid December. I expect it will be to ask how I'm doing as they have not suggested any other delaying of the inevitable. They may want to do a scan to see if it's spread elsewhere. The strange thing is I feel and look quite well apart from the bleeding, though it's not heavy. I was told to look out for signs of anaemia and let them know if I have any symptoms eg dizziness, chest pain etc which thankfully I haven't so far.. I was supposed to have had a call regarding End of Life, palliative care but heard nothing so far, though don't really feel ready for that as I'm not in any pain at present.
Maybe it's just me, but I feel a bit abandoned now, though I've just come back from a lovely holilday in Italy and now have a horrible cough and cold, so probably feeling a bit sorry for myself! Thankfully I have tested negative for covid.
Hi Nan3942, we might not have the same cancer, but like all incurables we share the same feelings, not fully in charge of our own bodies, and constantly waiting for others to decide our way forward, I feel good apart from the side effects of the treatments, I was told 6 to 24 month's which is up next January, but stuff that it's only their guess, I'm going to enjoy life no matter how long or short it is.
I'm happy that you had a good time in Italy, where were you, I've only been there once 2days work so never saw anything.
Once your cold is over try and get away again, big hugs, Ulls
Thanks Ulls. I appeciate your support and encouragement and hope all goes well for you.. I went to Tuscany with friends on an 8 day coach holiday with Travelsphere. The coach picked us all up at Pisa airport. Tuscany is beautiful. I have written about it on my BLOG page yesterday, with a few pics of Pisa and Florence. I have made a bucket list of things to do before clog popping time! Flying was my first achievement. Another is to go in a hot air balloon but maybe not the right time of year for that. I hope to go to Jersey with the same friends in the Spring and take my eldest daughter as we've never been there either.
Ann x
Thanks Ellie. I've just received an appointment for another ct scan so will find out if my cervical cancer has spread elsewhere. I have been given up to 2 years, though they don't really know how long anyone has got left, as you have proved. My best wishes to you x
Ann
Hi Ann, just saw your post as I haven't had any notification of it! Wondering when your appointment for the scan is?
If they are saying up to 2 years, you are right, know one knows how long, all they can do is guess, going by statistics and sometimes those can be out of date!
I am like Ellie, Elliekate and Ulls will join us soon I hope and am well passed my sell by date. Yes I suffer from various side effects, one of which is my mobility which is worse than it has ever been, caused by the drug that kept the cancer at bay. However I will continue doing what I can. We have just come back from a two week holiday in Salou, it was lovely although most of it was spent in my wheelchair, we make it the best we can and always enjoy ourselves.
Book your Hot Air Balloon ride for spring in Jersey, it is an amazing experience, we did our ride in Florida!
Good luck with your scan, please let us know how you get on! I do hope you stay pain free!
Love Annette x
Hi Ann, yes that's good you don't have too long to wait for your scan. Sometimes we wait longer for the results and that can be the difficult bit. It's not easy but try and concentrate on your holiday and not speculate about the results! Please keep us posted!
Love Annette x
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