Prognosis

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I 'm 80 and last year I had treatment for stage 3a cervical cancer, (cisplatin chemo and radiotherapy plus brachytherapy). The next scan came back clear of cancer and I was very relieved, but not long after I started bleeding again and a further scan showed it had come back in the same place. A pelvic exenteration was discussed but it was decided I would probably not survive this drastic, major op at my age.  I was told I might have a few months, up to 2 years left as my cancer was now incurable..

I asked about immunotherapy and after they checked my old biopsy, it was decided it would not do any good. I have a phone appointment with my consultant in mid December. I expect it will be to ask how I'm doing as they have not suggested any other delaying of the inevitable. They may want to do a scan to see if it's spread elsewhere. The strange thing is I feel and look quite well apart from the bleeding, though it's not heavy. I was told to look out for signs of anaemia and let them know if I have any symptoms eg dizziness, chest pain etc which thankfully I haven't so far.. I was supposed to have had a call regarding End of Life, palliative care but heard nothing so far, though don't really feel ready for that as I'm not in any pain at present.  

Maybe it's just me, but I feel a bit abandoned now, though I've just come back from a lovely holilday in Italy and now have a horrible cough and cold, so probably feeling a bit sorry for myself! Thankfully I have tested negative for covid.

  • Hi ann hot air balloon is the only method of flying I've never done, if you get the chance video part of the trip, it would be great to see, and I agree with Annette dont speculate on out come of your scans, whilst I was awaiting results of my original scans I googled them, scary, won't be doing that again. Big hug Ulls 

  • Hi Nan, I just was wondering how you were doing and if you had seen anyone since your last post.

    When the End of Life team were mentioned to me, like you, I thought it was too early and I wasn't at that stage yet.

    However my GP explained that they would rather discuss things with you "while you are feeling well" so that they know your wishes. So please don't think because they have talked about it, they think you are at that stage. In fact it is the opposite! I hope the immunotherapy is doing its work!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Well said Annette, spot on big hug to you for that, life is for living, keep it up girls