My apologies for my recent absence from our little community – there are two reasons.
Firstly, I was quite deeply offended at the recent unnecessarily heavy-handed manner in which the powers that be dealt with our “offensive” behaviour – I think they maybe should recognise the specific circumstances that bring us together in this place and cut us a little slack…
Secondly, whilst all of that palava was unfolding, I was also going thru the Scanxiety nightmare of my 9 month test & scans and whilst the CT Thorax/Abdo/Pelvis report was Stable Mable, the CT Brain reported 3 mets which, as many of you know, in late-stage SCLC usually signifies the beginning of the end…
And so it probably is but my Oncs are not letting me go without a proper “tear-up” as the proposed new treatment is RT Brain (planning session next Weds at CUH), followed by a second go on the original chemo of Carboplatin/Etopside (which apparently is effective at crossing the brain/body threshold) and continuing with the Atezolizumab. He even said that there are “other” possible treatments after that…
It is quite interesting in that SCLC is usually not treated with Atezo and coupled with the incredible response since diagnosis, my onc said that all normal bets are off because this is new territory, even for them… We’ll see…
Much Love & Huge Hugs
Stay Strong
SiT
I didn’t like the mask when I had 6 weeks of radiotherapy 10 years ago. But it only lasted for about 7 minutes at a time which did make it bearable. I wouldn’t like to go through to it again though. I didn’t want to keep my mask I know people who did.
Ruth
Hi
You're going through a tough time and I can sense your cheeky sense of humour being crimped at the edges.
Now, my curiosity is definitely getting the better of me and I have to see the mask. I have absolutely no idea what to expect, I have an overwhelming vision of a Joker mask but the nurses probably wouldn't be able to do their job for falling about laughing, tears rolling down their cheeks so go ahead Simon, show me!
Tvman
There is a difference between being funny and being unkind. I'm not well you know.
Pet and me are special friends, there are all sorts of goodies available to the old Norbs doncha know?
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