New to this forum

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Hello 

I have just joined this forum and of the posts I have read it will suit me just fine. You are inspirational people. 

This will probably be my last year and I am trying to live it as if the active decade this cancer will deprive me of has been concertinaed into 12 months. 

While I still can. My diary is populated with catch-ups and coffees with friends. Walking my dogs. And holidays and special days out with my children. Every moment has become precious.

i also find that looking at the world through the lens of someone with limited time has made me especially aware of how beautiful it is.  I think the cherry blossom and hawthorn blossom have been kind for me this Spring and my roses will give me a wonderful summer. Bird song is so calming.

Bittersweet is that I am going to be a Grandma for the first time soon. I just hope I am blessed with some months with him.

Looking forward to hearing from you all xxx

  • Good afternoon Rosiee and a warm welcome to the group . The support on this forum is excellent and genuinely ment. They are a bunch of extraordinary people and I hope you will come to value it as much as I do. This is a safe space to be totally honest about your feelings and dealings with your illness. If you check out the morning chit chat threat you will see that we do have a laugh and fun as well as more serious postings. Big virtual hug from

    Angie and Lilly the cat xx 

  • Hi Rosiee

    Welcome to the forum, though sorry you have had to join.

    You will get a lot of support from everyone, and a shoulder to cry on when and if needed, we all support each other.

    We had another new lady  join the other day with the same cancer, and I have to say, my hubby had that one, I have a different one.

    Though cancer is cancer, having the right mind set,  helps, though at time  does go by the book.

    You can go on any thread you may wish to, and there is a gardening one, and photos of lovely flowers, if interested..

    Others will come in they normally do.

    Just wanted to welcome you.

  • Hello Rosiee

    A warm welcome from me too !

    There are so many lovely people on here with various types of cancer but we are all riding the same rollercoaster 

    My cancer is aggressive but at the moment I’m lucky to still live my life without too much restriction subject to the side effects of ongoing treatments 

    Every day is precious and I try to focus on positivity and doing things which bring me joy - family , close friends, my garden which gives me a sense of calm 

    You won’t find me on here in the small hours as I sleep like a log (lucky me) but there’s usually someone here Blush

    Lucy xx 

  • Hi Rosiee A warm welcome from me too, I am the Night Oel here but there are others who also post or reply at this time of the night due to living in a different time zone so you will usually have someone to talk to!

    I have Malignant Melanoma with spread to lymph nodes, chest, abdo, pelvis and bones. Stage 4 right from the word go. I also have the Braf Gene. I’m sure you are looking forward to seeing and cuddling your first grandchild. When I was diagnosed our first grandchild was just over a year old and like you I thought I would miss her first day at nursery, school etc etc but also like you I was determined to live every day and make memories with my family. I went on a Trial for a Targeted Therapy my oncologist arranged. I was on the drug for over 3 years. Never say never! Now I have 3 grandchildren 2 girls who are sisters and our daughters girls and 1 boy who is our sons child. With every one I wondered would I see them start school etc. The eldest is now going into 2nd year of High School (aged 13) her sister is aged 10yrs is in Primary 5. Their cousin is almost 11 yrs and in Primary 6 they are both in the same school. Well as you can imagine no one expected me still to be here, yet here I am and we are still watching and waiting! If it can happen to some, it can happen to anyone. There are more people on this Forum than you would think, passed their predicted sell by date. Miracles do happen. I hope one happens to you. I believe a positive attitude can help!

    When is your grandson due? I found our recently my niece is due a boy in August, so I’m looking forward to that!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Hiya Rosie. Welcome to the forum. The love and understanding in this forum is wonderful.

    Look out for gardening, reading, what r u watching, crafts and hobbies feeds.etc...what ever ur interest...lol

    I am sorry you're here, but while u are u will make good friends who through rain and shine will be here for u.

    Hugs and love 

  • Dear Annette

    thank you for welcoming me to the forum. My grandson is due July 4th not too long to wait now. How lucky you are to be surrounded by children and grandchildren. 

    I find your story amazing. Miracles do happen and you are certainly one of them.

    My late husband passed away in 2007 due to melanoma. At that time there was no licensed therapy to target metastatic melanoma. And he was too poorly at the time of diagnosis to participate in a clinical trial or tolerate chemotherapy.

    Best wishes 

  • Hello Rosiee

    And welcome to the forum from me too!

    I don't post as often as I used to, but I do keep up with all the posts here.

    It is a lovely supportive space for everyone, and I hope you find it so too.

    I'm just coming up to the third anniversary (though I'm not celebrating it!) of being diagnosed with incurable cancer. Like Annette, I was straight to stage 4, yet I had no symptoms and felt well.

    I'm glad I'm still here, like you, trying to make the most of the time I have left. I'm really pleased to be getting my state pension soon.....thought I might have to wait another year! But I'll be getting it in the autumn. I never thought I'd be pleased to be officially old! I don't have any children or grandchildren, but do have an awful lot of nieces, nephews, great nieces and nephews. Don't get to see them often, as I'm living in Scotland and they are all in England.

    I envy you your dog-walking. I had to say goodbye to my dog a few weeks ago, and I'm hardly walking much at all now. What type of dogs do you have? There are several cat-owners who post pictures on here too.

    xxxx Kate

  • Hi Rosiee, yours is a beautifully simple introduction to the way you have decided to look at life now. I was diagnosed in August 2024 and, after initial negative overload, came to more or less the same conclusion. I enjoy my grandchildren, especially the cheeky 4 year old, and am pleased she can't fathom the true depths of my enjoyment. The new focus as I call it can be intense and as beautiful as it is sad. Do keep walking, talking and enjoying...lots of people here when things do get rough. And beware..

    many people here have outlived such prognoses for many years - so conserve your energy! and all the best.

    Patrick xx

  • Hi Rosiee, and lovely to meet you, though so sorry it's under these circumstances, and I love your  attitude to LIVING with your diagnosis, one shared by the amazing girls and guys,"there are a few of us," on this special forum of ours, so please no talk  a prognosis, as no-one knows how long they have, and it's not helpful to enjoying your time with some made up countdown clock, ticking in the background.

    I agree with you 100%, how your perception of life and the world around you changes with our cancers, and so much for the better, it's just a shame we need this diagnosis to open our eyes. 

    I'm 3 years into my journey and almost out of treatments, like you, co-morbidities ruled out a few options, but I'm doing ok, thanks to my wonderful family and friends, my little dog,  Poppy, and the guys on here.

    I love my walks with my partner and the dogs, being with friends, arts and crafts, gardening and holidays, but mostly being with family, I am blessed with 4 kids and 12 grandkids and a great granddaughter, so many congratulations on becoming a grandparent, I  will have everything crossed for good  health for mum and baby, and lots of time for nana, to make many special memories with him. 

    Eddie xx

  • Hi Rosie

    A warm welcome to our 'family'. Like some I jumped straight here and a newbie since Feb/Mar.

    You can be how you want to be, feel how you need to, rant if you wish, but we will be here to support you on any way we can and share the ups and downs.

    There are many non-condition threads you can fully immerse, dip into or just create your own to join (or not). Whatever takes your fancy. A way to remind us of the simple pleasures in life, but feeds the soul.

    I'm not a prolific writer, but here it sometimes can't be helped.

    So welcome and warm wishes from me.

    Love

    Sledge x