5 days in after

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So I've had my first chemo on Wednesday. Mild headache on Thursday, which ramped up Friday. Had to put my head down in the afternoon. I've had the runs since Friday night but there is no let up. The drugs aren't doing anything to alleviating it. No temperature though. Eating is a challenge. Everything is tasteless and I have to psyche myself up to eat.

I've been avidly drinking 3-3.5litres of water, slathering moisturiser twice a day. I can't stand the smell of the unscented lotions. 

I've woken up, my kidneys feel bruised and I ache.

Having a pyjama day!

  • Nope. Have been asked to go in to hospital to check for infection. Sob  just want to lie down and ask the world to leave me alone and let me sleep. Sleeping

  • Finally back from the hospital. Fortunately no infection!

  • Hì Sledge, I'm so sorry your having a tough time after your first cycle, finding the best anti emetics, isn't an exact science, and hopefully knowing your reactions will help them prescribe you a better one, good to know there's no infection and your drinking well and managing to eat something, Will have everything crossed your feeling a little better soon, and cycle 2 is much more manageable.

    Eddie xx 

  • Morning Eddie 

    Last few days have been brutal. Although I haven't been sick, my appetite is gone and I've had the runs (all day and night). Immodium doesn't touch it. The irony in all this is that as a diabetic I crave sweet things and now I can't stand it. Anything sweet makes me want to throw up. Even trying to eat savoury I can taste the sweet element once it's breaks down in your mouth. I can't get rid of it. even water is beginning to taste sweet. I haven't drunk as much yesterday but I'm hoping I can throw some electrolytes into flavour it and that should help. 

    Hopefully I am out the other end of this, as I feel much better this morning, but I am still taking today off work.

  • Hi Sledge,  I am sorry that you are having such a tough time.  I am glad you feel a bit better today.  I admire you that you are still in work.  I took all the time off work last time I had chemo.  Hope you enjoy the sunshine today.

    Lee 2 x

  • Hi Sledge, I'm so sorry for the awful week you have had, it must have felt like torture how it affected your taste buds, though it's good to hear things have settled, and absolutely a day of rest my friend. 

    Electrolytes are great for replenishing fluids, their what I use, I am not diabetic, but when I have the runs my go to foods are, real greek yoghurt, eggs, rice, steamed veg, toast and miso soup Asda sell it but if you family or a friend shop online, there are better ones available.

    Eddie xx

  • Thanks for the food tips. I already had the yoghurt, eggs and toast in mind. The spicy stuff doesn't suit me at the moment, so I'll start with easy stuff. 

    Hope you are enjoying yourself

    Sledge x

  • Your welcome Sledge, and thank you, we're all having a day, as I hope you are, take care.

    Eddie xx 

  • I am so sorry you are having such a horrid time. Have you contacted your CNS? Your symptoms sound pretty serious maybe they can consider a dose reduction? I had some unpleasant side effects from chemotherapy in the beginning. Once they reduce the dose a bit , the quality of life is much improved. 
    Many research indicates there is no difference in outcomes between 100% and 80% of dose give to patients. 
    Definitely write everything down and keep your team updated. 
    Take care Stella