Lovely morning chit-chat thread December 2024

Hi Ellie, that's so awful they treat people like that, especially people in our situation. I sometimes think appointment clashes aren't always bad luck, will it be less difficult getting another eye appointment, or is it oncology comes first. I hope the lady at PALS sorts it soon for you, I'm not surprised your stressed my friend, these appointments are so important for you.

Ellie, I'm just back from hospital, I was supposed to get my new meds yesterday, "they changed them from the one's we talked about yesterday", but that's good news, not getting them was the problem, so went to pharmacy, all I had was my consent form for treatment, and the specialist pharmacist was there, she called my CNS, gave me the talk on my meds and I got them in 30 minutes.

Great hearing from Lee, I hope he can have some nice family time over Christmas.

I'm with you Ellie, about scans, the one they've booked for me, is one I had a month ago, WHY?, maybe my tumours have to grow a bit to be identified.

"Good" news it was osteoporosis and not cancer Ellie, that's what I'm hoping for,  I already have both, and having cancer in my bones would change things, 

We may be falling to bits my friend, but we are still here, and what about Ulls, wonderful news, gives a little hope to us all.

Eddie xx 

Hi Ellie

It's great that you're finally getting an eye appointment at last! But how annoying, it being on the same day as another appointment. 

Hope you're not serious about cutting the grass at this time of year! 

And I hope you're here to have a good moan for a long time to come!

xxx Kate

Hi Eddie

I'm surprised they are doing so many scans....all that radiation.....

I had an infuriating meeting with my support nurse a few days ago. I was persuaded to make the appointment by several people, as I haven't had any contact with my named nurses for well over a year. Now I know why I was avoiding them! Not worth bothering with, and certainly not supportive!

But, I had a good meeting with my GP this morning, he's great!

Been writing cards and wrapping presents this afternoon, and getting in the mood for Christmas. We'll be having a quiet day, just 2 of us, then going to the pub in the evening.

Hope you'll be invited to spend time with your family Eddie! And with your guests too.

xxx puddock

Hi Puddock, I've only had 5 scans lately and 3 were MRIs, so nothing to worry about, in 2022, radiotherapy year i had 37 CT scans, each one gives you the equivalent f 3.5 years background radiation, I as glowing for a year.

Sorry to hear about your support nurses, isn't there one among them that's ok, saying that, they should all be ok, I saw my CNS today, I just popped in to see her, no appointment, and she sorted my problem in 15 mins, one of my nurses doesn't like me, feelings mutual.

Yippee, you have a wonderful GP, I think you've mentioned him before, it's good to know you have someone to turn to. It's so important.

I'm sure you mean, the 3 of you, and no, I don't mean me, I mean Candy, I'm sure you wrapped her present today, I don't give Poppy one, as she gets more than me anyway. Lazy day for me, a walk to allotment for a natter and a trip to hospital to sort a problem, and have Emma round tonight, she wants to go to Edinburgh, when I visit my auntie on Frida, but can only take them there, so will have to return on the train, so we will sort that out this evening hopefully as Em and her partner can do the driving to Edinburgh.

I have 3 invitations for Christmas day, my local auntie, who I've been going to for years, our Emma has somehow found herself alone on Christmas day, so will be at my place all day, and my auntie who I will be bringing back from Scotland, has promised me the best Christmas dinner ever, I'm sure Em, will have some of that. I have my 1st Christmas dinner tomorrow at Aurora, with friends.

love Eddie xx

Good evening 

I had Christmas lunch with lady neighbours. It was all going well. Then suddenly everything became fuzzy and I feel disconnected with everything including my own hands. Very strange and glad one of the ladies drove me home. 
After a rest, I feel Okish and drove to the Nuffield hospital near me. As I still have private health insurance and the oncologist can add a private drug that might help me. It is all rather plush, chemotherapy patients have their own en-suite, bed, chair, and TV! The nurse was very nice lady from South Africa. I shall sort of looking forward to next Wednesday  

I saw the oncologist and moaned about my side effects and hope for a dose reduction. But he thinks is all relatively OK and ordered the same again! Now have BP so will need to take meds for it.

Tomorrow hospice nurse will call me for an assessment and see what she suggests.

How are you feeling Alana? 

Enjoy your Christmas dinner Eddie, one of many to come!

take care everyone x

Hi Stella, I hope your feeling better now, not a  nice thing to happen, and thankfully you had company at the time. Did your oncologist give you an answer for your fuzzy turn?.

I think I can safely say, on Wednesday morning you would much rather stay in bed, 

I am glad to hear you have access to your hospice Stella, as do I, and I would recommend them to everyone.

I hope your feeling better now, and relaxing or doing something nice, and thank you, I'm sure Christmas dinner tomorrow will be lovely, good friends and for charity, so may have pudding, it's for a good cause 

Do you have plans for tomorrow Stella, after your assessment,  I  start my new meds tonight, so just hoping I feel ok in the morning. Good luck for you tomorrow.

Eddie xx 

Hi Folks, I have been trying to write this on and off for over an hour. The text box didn’t appear when I clicked reply!

Ellie, I hope when they change your appointment it will be before 15/1 and not after that. You have waited long enough already!

Lee, Alana & Stella, I hope you are all feeling a bit better. I have been to the Nuffield, did they say what caused your fuzzy feeling?

Kate, was it you who said they were wrapping presents and writing cards yesterday? I don’t want to click back to look in case I can’t get back! I intended to write some cards on Tuesday night but couldn’t!

Eddie, with all these scans, maybe one day you will be the Invisible man!! I hope everyone enjoys all the meals they go for at this time of year! I will try to write a thread here about my couple of days, if it isn’t here, I haven’t managed it!

Hurray! Well, my days were all planned out. Card writing&present wrapping as well as getting our decs done on Tuesday night, McMillan coffee morning Wednesday morning, Crochet class in the afternoon, followed by a night in church listening to the children of the primary school (2 of our g/children are at) singing Carols By Candlelight. Thursday meeting my sister, Friday visiting my friend as usual..

BUT on Tuesday afternoon we went for our Covid & Flu jags and I felt unwell on the way home and Vince wasn’t feeling too good when we got home!

Everything i had planned just didn’t happen, been in bed a lot of the time and tossing a coin to see who makes a cuppa! We have both been pretty miserable, headaches, sore joints, especially our arms and feeling bit dizzy. Hoping the worst is over but who knows!

I don’t think I will be having any more of either! Anyone else had a bad reaction to this year’s jags?

Hi Annette, sorry to hear your having problems getting on the forum, occasionally when I'm typing a post it disappears, so I have scroll up, click on the forum, then click on the thread, scroll down to the post I was replying to, click on reply and it's there, luckily Annette the only "bad" experience I have with scans is the nuclear bone scan, when you can't give the grandkids a hug for a couple of days, awful.

love Eddie xx 

Awww Annette, that's just so unfair on you and Vince, I do hope your through the side effects soon, and can catch up with a few things, especially your grandkids singing, I  hope it wasn't a one off event, personally I was ok after my boosters, but I  have a few friends hit much harder than usual by their boosters which has put other friends off having them altogether, not sure that's an option for me, I wish you both a speedy recovery my friend, take care.

love Eddie xx 

PS, just started new meds,  so sleeping off and on.