Pessimistic and no faith!

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Morning all, hope you are all keeping well.

Had an appointment with my Oncologist yesterday, he authorised another 9 chemo's. But I haven't yet had a scan to see what effect the first round of chemo has had. He said on the basis of questions he's asked  me, my responses and the look of the area concerned is a clear indicator that the chemo has had some effect on the tumour. This is positive news right? But still I am mentally unable to accept it and remain pessimistic to safeguard myself. I believe this is because I have no faith and went through such a bad rollercoaster time when they were trying to find a diagnosis. I mean amongst other mishaps they completed a scan and advised me it wasn't cancer I had a bleed. Yeah right, I actually had a 15 cm tumour, how the hells bells do you miss that on a scan huh!! Now when they give me positive news, I struggle to accept it as I'm so scared they'll give me hope but then only take it away again down the line. Does anybody else feel this way?

Food shopping today and I think a cream cake is in order! Hope you all enjoy your day whatever it is you may be doing. 

  • Good morning Mandy,  sorry to hear about your Dad, please pass my good wishes on to him and hope that he gets all the treatment he needs and will be home soon.

    Lee 2 x

  • Marie, many thanks for your lovely message, and thank you, our family is always there for each other even more so now as dad and now mum face a difficult future. Mandy

  • Oh you're very welcome. You deserve it, never have I met a family so strong. Thank you for keeping me updated and I am really hoping things get better for you all. Big love x 

  • That's so kind of you, and we're ok thank you and dad is much better today and is out of the critical care unit, he's not usually in for nearly 4 days, and can give him a hug, which these days always makes me cry, dad hopes to be able to answer his own Emails tomorrow, and thank you Marie, dad thinks very highly of his friendship with you, Mandy

  • Oh how wonderful to get up to this good news. That's ace. So very happy to hear this. Thank you for keeping me updated and tell him to rest first and be in touch when he is better able. You're very welcome and take it easy. Much love to you all x

  • Morning Marie, have you missed me lol, feeling good today my friend, just tired, and all being well I will be home tomorrow and can catch-up properly soon.

    Love Eddie xx 

  • Very much so and so glad to hear you're feeling better. Awesome news. Absolutely! Rest, recuperate and will hear from you when you're better able. Big love x

  • Hi Marie, I hope yesterdays chemo went well and your not feeling too bad, and I have to know how did the bloods go, did your little white lie help. How are you and the family feeling today, have you all shaken off the cold, 

    what's the latest with your pain management, are you and Helen in agreement regarding your Zomorph dose, are you to be allowed to self regulate, or talk to Helen first, that's great the aids from the CR team are helping, but no mention of the new feet on the sofa, If you need a carpenter, I'm very cheap lol, 

    I have passed on your love and best wishes to all the family, a little update,  Mandy's doing amazingly well, as well as she's felt for a few years, Lesley is doing great as well, she had her stoma out last Friday, and everything is working as it should, she just has to be careful what she eats for a little while.

    Regarding my exercise my friend, if I don't my heart tells me about it, I'm only guessing but ,my recent disinterest in many things, worrying about family and lack of exercise, brought on my bradycardia, which is very rare it happens, but serious, all good now.

    Lovely sunshine Marie, I  hope your able to enjoy it too, I'm just sat in Mandy's garden reading/studying and napping, what have you been up to lately, and do you have plans for the coming days, thank you again for helping Mandy, It's appreciated my friend, please say hi to your family for me.

    love Eddie xx

  • Good morning.

    It's so good to see you feeling better and up and about. Awesome!!

    Unfortunately Eddie I was not well from the chemo and I'm still not well. In fact I have cancelled everything that I may have a holiday break. I went for chemo but on getting home I had an extreme adverse reaction. Absolutely dreadful and still not feeling the greatest at all. I will plod on the best I can. I'm free until next Wednesday to which I have a scan. Although I will contact them Monday as this picc line needs sorting once and for all. 

    Pain management seems to be going okay. Still on the 30mg and so far, no problems. No need to do anything more as yet. The cr team have advised they can't do the feet. Because of the shape of the already existing feet. I'm managing okay at the moment with the cushions and I will hold you to the carpentry job lol 

    So glad to hear you and yours are all doing well. Ace news. You have had so much on, there is no wonder you took ill. And exercise is difficult sometimes especially when you don't feel the greatest. You do your best and what an amazing job you do. Make sure you take your rest mind.

    No plans in the coming days. Taking it easy and focusing on recovery. Reading studying and napping in Mandy's garden sounds marvelous. How are you today?

    Big love x 

  • Hi Marie,  I'm so sorry to hear how awful your chemotherapy has made you feel, is it the usual side effects only much worse, or different ones, and did you talk to Helen about it?, and absolutely if you think you need a break, then do so.

    I do hope you are feeling a little better, and not just getting used to the reaction, I wish I knew something about CAAEs to help, and well done for Monday, you've put up with the PICC and the muppets that " maintain," it long enough.

    Fab news about the pain meds, how is your eating and sleeping, and strange they can't sort the sofa's feet, what's yours and Dave's thoughts about that, thankfully the cushions are helping, 

    The families good,  thank you my friend, I'm stopping with Mandy till Monday, and Sheila's back, she should be home by now, but she always spends time with her family first, and I will see her Monday, when I move in, I'm feeling ok, just no energy and little motivation at times, but getting a little better and bones less uncomfortable and not bleeding so much.

    If I don't exercise Marie, I get chest pains, which aren't very nice at times, I have a trip to Scotland next weekend,  Emma and SIL, will be going as far as Perth with me, and doing the driving, lovely, then straight down to the Scilly's for J and Js wedding,

    as for Mandys garden its designed for 2 young boys and is next to the A1, so functional, but a sun trap lol.

    love Eddie xx