Morning all, hope you are all keeping well.
Had an appointment with my Oncologist yesterday, he authorised another 9 chemo's. But I haven't yet had a scan to see what effect the first round of chemo has had. He said on the basis of questions he's asked me, my responses and the look of the area concerned is a clear indicator that the chemo has had some effect on the tumour. This is positive news right? But still I am mentally unable to accept it and remain pessimistic to safeguard myself. I believe this is because I have no faith and went through such a bad rollercoaster time when they were trying to find a diagnosis. I mean amongst other mishaps they completed a scan and advised me it wasn't cancer I had a bleed. Yeah right, I actually had a 15 cm tumour, how the hells bells do you miss that on a scan huh!! Now when they give me positive news, I struggle to accept it as I'm so scared they'll give me hope but then only take it away again down the line. Does anybody else feel this way?
Food shopping today and I think a cream cake is in order! Hope you all enjoy your day whatever it is you may be doing.
Hi Marie, what I meant, was stick with the 30mg in three 10mg tablets and if you feel you could manage with a smaller dose than 30mg ASK, if it would be ok to self regulate absolutely talk to Helen first, but please don't alter your pills in any way, I know Zomorph 10mg or 30mg, work for 12 hours, for breakthrough pain, and it's probably the increased dose which has reduced your pain.
Well done with getting the community response team on board, I haven't had them long,"I'm only involved with the crisis team," part of the community, and it's still early days, and I hope your meeting with them tomorrow is helpful
Oh Marie, I'm so sorry the PICC problems have struck again, 4 wasted/frustrating hours, no wonder you were so tired, and not surprised it carried on the following day, and now you and Dave have a cold, at least you have your grandson with you, always lovely to have them visiting, and listen to your body my friend.
I'm still fatigued Marie, my new meds are hitting me like my first ones did, but the much larger dose, has hit me hard, but the only way through it is to exercise, and with very little motivation it's a struggle, but the family are helping.
My trips to Scotland and the Scilly's, will be mainly to rest, my friend, J & J, will do most of the driving to Exeter airport, and we will have a 24 hour stopover at my sons so they can meet the twins for the 1st time.
Lesley is doing amazing, her lead oncologist phoned yesterday, he's told us chemotherapy will start in 3 to 6 weeks and there's a chance of cure, which is fab, but hard to believe.
It's a soso day, up at 9.30
, had a walk to the allotment and met some friends, and now arranging appointments, cooking a pork roast for later, when Sheila's son and DIL visit, then going through some paperwork and answering posts on the community, bath then bed to end.
Tomorrow is quiet, just the metastatic group at Aurora, just 3 ladies and I turned up last month for the first meeting, so hopefully 1 or 2 more this time.
love Eddie xx
