Pessimistic and no faith!

Hi Marie, I shallow breathe all the time and like you, if being tested and have to breathe deeply, I do it very slowly and if ok, while laying down 

Awww Marie don't worry about ticklish feet, as do I, my knees are the worst though, my feet jump when they start, but it's only ever for a couple of seconds. 

Great to hear you and Dave have ways to relax as well, I'm sure we all have ways we relax each other, I hope you told Dave, no cold hands.

Sheila's, great she's on a cruise around New Zealand with her sister,  it's her Christmas present from both of us, they have never been before.

That's what I heard about Matlock, and parking is a nightmare, but we thought we'd give it a go, but just getting close to Matlock it wasn't good,  so I remembered you mentioned Denby Pottery, and as it was only 20 mins away we went there, we quite liked it but only had 90 minutes, bought a carrier full of yummys, and will go back when we have more time as we had to go to Auroras Christmas market at Worksop. Two of my friends dressed as gnomes in Santa's grotto, I was tempted to sit on Santa's knees.

Does honey and turmeric go together Marie,, seems an unusual combination to me.

 Oh Marie, I'm so sorry you had such an awful night, they are truly awful things to go through lovely, I am so glad things aren't so bad this morning,  and do what you must today.

No need to apologise, I sort of guessed Amy, wasn't just visiting and anyway it's a private family matter.

Marie, my apologies, I've been having tests, to find the cause of my aphantasia, "I can't see images in my mind ", for a few months, we never found one, but there was a shadow found in  my brain, at the back low down, so had an aspiration done, they take a sample from the area, "a kind of biopsy", anyway before all tests/results were in, my neurology team told me I have  PCA, a very rare type of Alzheimers, so you can imagine, my treatment is failing, Mandys not started hers yet, so we're fearing the worst, then they decide to tell me, wrongly, I have PCA, as you can imagine being told this at any time would be awful, when you have your daughters and your own futures in the ballance, it's so much harder. Hell indeed for 8 weeks, I'm ok now.

We were going to go to Aurora Doncasters Christmas market today, but weather is awful, I'm at Mandys now, Lesley,  Mandys mum is here, for lunch and we are looking to get away for a few days, just the 3 of us, but can't agree on where, that's Lesley and Mandy who can't agree, I'd be happy at the sewage works, if it's with them. Women!.

love Eddie xx 

Hi Marie

Just thought I'd drop in....

When I was having treatment every three weeks at the hospital, one thing I really looked forward to was a foot massage! They have a masseur who works in the treatment clinic a couple of days a week. She would do my feet for me whilst I relaxed in the chair. It was lovely! Not ticklish at all.

xxx Kate

Good morning. Yes, I'm not keen on my feet being touched but I will give it a go. I can but try and from what I've heard it's all good. Here's hoping they are but a month in getting in touch with me. 

Wow Sheila cruising New Zealand!!!! That's absolutely amazing. I imagine she is having the best time ever. What a truly wonderful Christmas present. I don't blame you with Matlock and I'm really pleased to hear you made denby. It was okay wasn't it. Small but enough. We got some yummies too. I was a little disappointed there was no cheese lol But the plan is this weekend we are doing the miles not styles parsley hay walk and there is a speciality cheese shop in hartington we shall go to. That's ace your mates doing the gnomes lol And you wanting to sit on Santa's lap. Well I would of done that's what I say lol 

I do like the honey and turmeric but you're right it's not my favourite. Earthy taste and I prefer sweet. Honey with cinnamon is my favourite at the moment but I have honey with cherry to try and I believe that may come to be my favourite lol 

Thank you for explaining Eddie and I'm sorry you're going through all that. I really hope you're feeling as well as can be especially with Mandy as well. Believe it or not you're doing an absolute grand job of everything. You're an amazing human lol Thank you for your well wishes. I still feel good physically at present and mentally I have improved for now.

Did you decide where you're going on holiday What a fabulous idea. That will do you all the world of good. Yesterday I had hobby day. Listened to audio, did some knitting and painting. No chemo today, week off hoorah. I have a COVID jab today and will browse Lidl afterwards. Hoping to get tree up this week. Tomorrow we will visit west bridgeford for a browse and have a breakfast at the lounge hopefully. 

How are you and yours? Xx

Hi Kate good to hear from you and hope you are keeping well. That's awesome sounds fab. I'll definitely try it. Glad to hear you're not ticklish! I wish I could say the same for me lol C

Morning Marie,  5 appointments today so a quick reply, I promise you'll love reflexology, though it doesn't work for everyone.

I haven't heard from Sheila since Saturday, they were told of WiFi black spots while cruising.

I really enjoyed Denby, and may even go again if we're in the area.

The parsley hay walk is a new one to me, will you be doing a mix of walking when you can and in your chair to rest, I hope the weather is kind, and you get lots of lovely cheese, 

I'm not sure Santa would have appreciated me sat on his lap, but the girls looked fab as Elf's. 

Not a fan of honey, Marie, or anything sweet really though macaroon bars and tablet I could eat all day, and their very sweet, told you im weird.

All's good here Marie, so don't worry about me, focus on yourself 

The trips been put back, as my auntie is coming to see me for 3 weeks at the weekend, I'm going up to Scotland,  Friday to see her and will be coming back together.

Enjoy your day my friend, I  must dash 

love Eddie xx 

Good morning. Wow 5 appointments! Don't worry and you do what you need to. How did everything go?

On Wednesday I got a phone call from the hospital to ask if I'd go for a Echo. They'd had a cancellation. It all went well and the outcome is everything is not that bad. The tumour is close to the heart but not causing any problems. Yet lol Yesterday I was back at the hospital for my oncology appointment. It was a routine chemo and lung toxicity check. Everything was good. She has confirmed she will keep me on the steroids but has dropped the dose down to 1x 10mg a day. Simply to see if I'm still good on that dose but with the ntention of going back up to 20mg if not. Fair enough huh. Today I'm back at the hospital to get my bloods done for chemo next Monday and to be frank I'm sick of the hospital lol I'm craving a day of doing nothingness lol

Yes, we will take the chair to parsley hay but I haven't been using it as much. The pain on mobilising has subsided so not needed it as much. Really looking forward to the cheese shop in hartington. I so love nice cheeses and pickles.

I'm guessing you're heading to Scotland today. Awesome! Have the most amazing time. That's fab too that she is coming back with you. How lovely. Please have a safe journey. 

How are you and family doing? X

Hi Marie, that's great you got to jump the queue, and the Echo showed encouraging results, and no signs of toxicity in your lungs, fab, and that would be great if they could lower your steroids, while keeping all the benefits they give you, fingers crossed, you have every right to get exasperated by appointments, they do grind you down, think I had 13 this week, Woohoo, I hope the weekend is yours, though I would  think having chemo on Monday, casts a shadow on your free time.

I am so pleased to hear  your pain is much more manageable, so you can get around on foot more, and it's good to know you still take your chair and use it when you need too, pacing yourself yippee.

Have fun at Parsley Hay, and Hartington, lively place as is the old cheese shop, PS there's also a farm shop and cafe, yummy cakes.

My appointments this week have gone ok, my oncologist agreed with me on treatments going forward, started new meds alongside my old ones on Wednesday, I had to go to the hospital pharmacy to chase them up lol,  still no confirmation of bone mets, I'm booked for another scan, no idea why, discharged from SALT, and totally knackered after driving to my aunties,  only 1 full day Marie, back home on Sunday, with my auntie and partner, as at cardiology on Monday. Well little mouse, I hope you get lots of wonderful cheeses tomorrow, and have a lovely day.

love Eddie xx 

Hi, Marie, I'm not long back from Scotland, and wanted to wish you good luck for your chemotherapy tomorrow, I hope it goes smoothly and incident free my friend 

How did your day out go, did you manage to have a go at the Parsley Hay, sound's like a big challenge to me, I hope you paced yourself, I'm sure you did, and was there lots of yummy cheeses to choose from at Hartington, and maybe some pickles, did you try the farm shop?, 

How are you feeling after your trip out, as you say you don't mind being tired, if  enjoying yourself causes it, and I hope D & A are well.

9 hours to get home, I'd like to say we stopped so often for my auntie and her partner as their both in their 80s, but no, I'm the weak link, sadly only had 1 full day, but it was lovely, Jean, made Christmas dinner and invited their friends, who were fab, they took the micky out of me all day and it was great, I am at cardiology tomorrow, and have to chase up meds again, my HT injection, priceless, best wishes again for tomorrow Marie, take care 

love Eddie xx 

Good morning and thank you Eddie. I have to say I never look forward to chemo day. What with the waiting times, picc line shenanigans and my psychological anxiety attack, it all frustrates me. I'm there for 10 as well so up early. Speaking of picc line went to get bloods done Friday and it wasn't happy. They had to take blood from my arm. Luckily it all went well. Not sure how it will impact today. 

Parsley Hay wasn't that disability friendly as recommended. Most of it was flat but the walk way was gravelly and not good for a wheelchair. The weather was awful. Because it was very open the wind factor was freezing. Unfortunately we didn't do much before heading to Hartington. We went to the farm shop and had lovely food. I treated myself to a pair of earrings. Then on to the cheese shop, got some lovely cheese and chutney. Had a walk round the village and home again. It was fab. Felt fine on getting home, chilled anyway and I'm never long in bed even on a good day.

So glad to hear you're home safe and that you had a lovely time. You must be exhausted. I honestly don't know how you do it. Superman lol That's ace news your appointments went well and oncologist agrees to treatment. I have everything crossed for you Eddie and really really really hope all goes well. Good luck with cardiology and enjoy your time with auntie. Let me know how goes it. Take care and don't forget to rest X

Morning Marie, not surprised you don't look forward to chemotherapy, I doubt many do, and you with the added worry that you never know the competence of the staff who will be treating you, just think about what your doing over the holidays and the time you have for yourself and family.

Don't you hate that Marie, they say disabled access or disabled friendly, and there NOT,  you just know they've never asked  anyone in a wheelchair their opinion. Bs 

Hartington is lovely, I'm glad you liked the farm shop and stocked up at the cheese shop too, and happy to hear you felt ok all day, Marie,  I thought you were sleeping well most nights, do you know why?, I  know you have a few possible reasons, do you think it's one in particular or a combination of them all.

Thank you Marie, I didn't do all the driving and just chilled at my aunties, but it was fun, and I got to meet their friends for the 1st time, so a lovely day.

I won't have all my cardio results today,  but will let you know, I  will post you later today to see how you are 

love Eddie xx