Pessimistic and no faith!

Hi Marie,  good to hear your feeling better, it maybe your colon waking up in the morning yes it goes to sleep, triggers your morning thing.

That's fab, you got out yesterday must have felt really nice, a walk and a little shopping  works for me too, Marie, running before you can walk, AGAIN, I know it's boring but bland, familiar, healthy foods with gut and Bowel issues. Especially far from home.

You told me about your trip to the opticians for new glasses, but not the xanthelasma, I hope your GP visit went well and your bloods are ok, can I ask are the growths yellow. Good luck.

Aren't DNs  great, mine Bev is an angel, hope yours are happy with your burns, Helen's a star. 

My appointment RE my RSA could  be 8 weeks away, maybe a score of 24 isn't too bad, I'm always tired, massage helps me relax and soothers a few aches, just got back from Mandys RT a little earlier today as traffic is a nightmare on Fridays.

Got my latest scan and PSA results, worse than hoped, but we move on, have MDT  Monday to see where we go, but Mandys my priority now. take care 

love Eddie xx 

Good morning. Not sure what the morning thing is. I seem to struggle with tummy and bowel but it's worse on waking. The other strange thing is the drowsiness. Again on waking and on getting up I feel tired and drowsy and have a need to go back to sleep. I guess it's part and package. What more can you do but go with the flow. The GP blood test was a disaster. They forgot to tell me I had to fast. They couldn't proceed and they have rearranged to Tuesday. I have no idea what this xanthelasma is but yes on googling it it looks like that is the case. Yes, the deposits are yellow. I'm guessing they'll tell me more when they eventually get round to doing the blood test. District nurse came and redressed the burn. They've switched to a new dressing with a gel. A better one they said. They're saying the gel will heal the area that is a little slow and lift it to return the skin to pink that it may heal. Otherwise they said everything is good. Sorry to hear the PSA results were not as hoped. I hope you're feeling as well as can be under the circumstances. Glad to hear though Mandy is doing so well. My thoughts are with her all the way, she's doing an awesome job. Today, popping to Sainsbury's to do food shop and will take a small walk in the woods whilst I'm at it. Sun is shining although thunder storms are expected. How about you? How are you and any plans? X

Hi Marie,  feeling tired and drowsy is normal,  welcome to the club, if you find a way through it let me know.

Aww Marie, that's pretty pathetic them not telling you how to prepare for the bloods, 5 seconds it would take them and saved you all that time and effort, good luck on Tuesday though, always good to learn Marie, you now know what xanthelasma means lol,

Duoderm dressings are good will speed up healing and should eliminate most, if not all the scarring, they can smell a little and occasionally leak, it looks like pus but isn't but if it leaks it needs changing ASAP,

Thanks Marie, PSA and scan results have deteriorated quite a bit since last scan 11 weeks ago, have my MDT meeting Monday, will know more then.

Mandys doing fine thank you, that's what's important to me, her last RT is on Monday too, I will pass on your good wishes 

Enjoy your shopping at Sainsbury's and your walk,lovely weather here as well, been to garden centre at Tickhill for a wardrobe and dressing table, was at Welbeck yesterday, daughter took me and even paid!!. Back at hospital later for Mandys 9th RT treatment then feet up.

love Eddie xx 

Good morning. Yes, feeling drowsy and bad tummy and bowels I've come to accept as part of the process. Still gets you down sometimes though huh. I know, the idiots not letting me know to fast. I don't think they realise that for people like us these trips can be hard work especially early morning trips. Can really take it out on you. Here's hoping it all goes well Tuesday. I'll find out what these dressings are. They did say it would speed up the healing process. The gel is in a tube separate from the dressing. They did say it can get messy and can make things look worse than what they are. They'll be here to redress tomorrow. Will see how goes it. Good luck with your MDT meeting tomorrow. I hope you receive some deserving good news. Everything crossed for you. And everything crossed for Mandy too. Wow last one tomorrow. Hasn't she done well. Amazing job!!! Tell her well done from me. Was the wardrobe and dressing table for you? Hope you enjoyed wellbeck and spent lots of money. You can't help but there can you huh lol We had thunderstorms here last night. I do love a big thunderstorm. It's been raining all day here today so not up to much at all. Lazy day. What plans have you?

Hi Marie, the feeling tired and drowsy is a bit of a curse, strangely mine eases if I'm busy but often goes away when I get in bed.

Regarding appointments I ask them to call me the day before and even if it's for something I've had many times, I ask what preparation is needed, helps with most appointments but not all.

Good luck for Tuesday, is it a 12 or 24 hour fast,  I'm the opposite to you  Marie,  I function "better" in the morning and am really tired mid afternoon, but joy of joys if I have a nap it ruins my night sleep and I feel awful the day after, Poppy gets lots of very short walks.

The burn dressings maybe new, duoderms come ready to use, so long as they work that's what's important.

Mandys been great, every appointment has been on Time and the radiographers have been amazing, luckily Mandy lives next to the A1 so getting to the hospital is quick and I will pass on your message.

The furniture was for my spare bedroom, long overdue, and fits, "I measured first", it helps you know. Wellbeck was lovely, food not so much, and never spent a penny 

Was nice here, started raining about 2pm but no thunder, just doing my questions for tomorrow's MDT, don't know if I should make them nasty or not. I am on my own today had a walk to allotment had a hour with Lynn, my neighbour, just talking, she said something, probably nothing, she's never met Sheila, so showed her a photo and she said "not what I was expecting ", any thoughts, seems a strange thing to say, PS Lynn is a wonderful kind and caring person. I have no plans till 10pm when I plan to go to bed.

Thank you for your good wishes for tomorrow, I'm sure there will be something they can offer hopefully.

love Eddie xx 

Good morning. Having them call you the day before is a great idea. Clearly I'm not as organised as you lol It's a 12 hour fast. Not looking forward to it as I'm guessing they'll not use the picc line and take blood from the other arm. It's usually the case as they're not qualified to use the picc. This will make me feel anxious and I'll be even more weak in having nothing to eat. This is when I usually pass out. I guess if I do I do huh it isn't the first time and won't be the last huh. Regarding the sleeping I just fall asleep and it doesn't seem to effect my sleep at other times. It's just the painful bowels that wake me in a morning to go to toilet. I guess you won't know whether or not the MDT is going to be heated until you hear what's going to be said. I really hope it all goes well for you and you get some good news. It's a difficult one as to Lynn's comment re Sheila. I guess you will never know unless you ask what she was expecting. One thing for sure it doesn't necessarily mean anything untoward. If you get chance I would ask. No plans today. It's difficult to make them when you're sat waiting for district nurses. I do try ask if they know as to when they're calling but sometimes they just can't give me an idea. Anyway to end on a good note we are going to Scotland again on Thursday. We managed to get a cottage in Strathcarron which means we'll get to visit a few places I've really wanted to visit but not had chance as yet. I'm a little anxious as I'm not 100% fit but we shall take it easy and I shall endeavor to recognize my limitations. We have broken up the journey with a stop over so that should make life easier. I'm really looking forward to the getting away and the break. Take care and enjoy your day X

Hi Marie, will try to answer tomorrow 

love Eddie xx 

Morning Marie,  will answer when I can. 

love Eddie xx 

Sure thing, no worries. Hope you're okay lovely. On route to get the blood test done X

Hi Marie, sorry for the delay, hope your bloods and burn dressings went without incident , I know you were worried about the bloods, hopefully Megan was there anditwentaswellaspossible, and how was the 12 hour fast, could you do most of it whilst sleeping. 55 years of hospital appointments and you'll be as organised as me, though I've just been on the phone trying to move an appointment clash before realising they were in different months, what a numpty.

Oooh I envy you, falling asleep as soon as your head hits the pillow and napping through the day as well, my sleep was good till about 5 weeks ago, slowly getting worse since, but nothing like the bad old days.

My bowels were not good for some time, radiation damage, fissures ,constipation and haemorrhoids with lots of  bleeding as well, nothing I could do about the radiation, but found eating well, little and often, plenty of water and the right laxatives, I self regulate,  and  now things are normal ish. Marie, have a word with your DN, maybe something simple like changing meal times could help, I'm sure she will have some advice.

MDT meeting was friendly, Dr answered all my questions before I asked them, my scan 12 days ago is deemed unreliable, never asked, so will have another plus a bone scan and PSA before I see her again November 4th, I am on plan B, adding a 2nd gen ADT to existing meds, plan C is pretty much sorted to follow on and there was even talk of chemotherapy to follow.

Lynn's comment is history, I've put it down to jealousy LOL .

Marie, my DN's will phone me 30ish mins before they arrive, around the time they start their previous appointment. Though they know I'm at my "best" in the morning and try to accommodate 

Oh WOW Marie, Strathcarron that's fab,  I'm so happy for you, and really happy to hear your having a stop over. It's a beautiful place, very remote and far far away must be over 500 miles away, it does have a railway station though, always handy, hope you and Dave have a fabulous time, I'm sure getting away will do you both good. You will be fine, just rest when you need to.

Easy day today, just met some of my cancer pals for lunch, had 3 hours of catching up, and will meet next week at Wellbeck for lunch and have a walk to Cresswell, not quite Scotland but it will be nice.

Say hi to Dave for me, Love Eddie xx