Morning all, hope you are all keeping well.
Had an appointment with my Oncologist yesterday, he authorised another 9 chemo's. But I haven't yet had a scan to see what effect the first round of chemo has had. He said on the basis of questions he's asked me, my responses and the look of the area concerned is a clear indicator that the chemo has had some effect on the tumour. This is positive news right? But still I am mentally unable to accept it and remain pessimistic to safeguard myself. I believe this is because I have no faith and went through such a bad rollercoaster time when they were trying to find a diagnosis. I mean amongst other mishaps they completed a scan and advised me it wasn't cancer I had a bleed. Yeah right, I actually had a 15 cm tumour, how the hells bells do you miss that on a scan huh!! Now when they give me positive news, I struggle to accept it as I'm so scared they'll give me hope but then only take it away again down the line. Does anybody else feel this way?
Food shopping today and I think a cream cake is in order! Hope you all enjoy your day whatever it is you may be doing.
Good afternoon. Yes, so glad to be home. Makes such a difference. All them familiar home comforts around you. Feel well, comfortable and content. And A is at present cooking a yummy curry for tea in the kitchen. Not doing too much, small steps and all that but I am getting up and doing a little pace round the house. Surprisingly the audiobook is going well. I'm able to concentrate and I find it relaxing. Sends me to sleep. No physiotherapy didn't give me anything to do on leaving. Just asked me to do things at the hospital then sent me on the way. I hope you enjoyed your trip to the coast. Awesome. To think we would have been going to Devon week after next. Nevermind huh. Hopefully there will be a next time. How are you today. Are you up to much? Enjoy and take care.
Thank you Kate. At present so glad to be home and feeling good. Hope all is good with you. Take care
Hi Marie, Isn't it fab being home, my favourite place, ,homemade food and a curry as well lovely, and hopefully a pudding, I've just got back from dinner with family and we had curry too, pheasant and vegetable yummy.. good to hear your pacing yourself and feel in a happy place, that's interesting what you say about the audio book, I do find I remember more if someone talks/tells me. The coast yesterday was lovely just Poppy and me and she likes her new seat, Been to farm, Sheila does her churchy things most Sundays so never came, but we may take the dogs to the coast later for a couple of hours. I didn't want to mention Devon as I knew how much you were looking forward to it, of course there will be a next time, say hi to Dave and A for me, take care.
Eddie xx
Good morning and hope I find you well. Curry was so yummy and yours sounds yummy too. Still feeling well. Legs are a little weak when going up stairs but I'm sure they will strengthen. Other than that everything is well. Audiobook is going well. Seem to be getting through much quicker than a book. It was a good idea. Grandson is going go karting today. It's a flat short walk, sit down and watch activity so I'm thinking I may go and get some sunshine and fresh air. There is an m & s near by so may have a browse and pick u some yummy food. I shall see how I go. Nevermind about Devon. Such is huh. Did you make the coast? I hope you did and had much fun. How are you feeling today and what plans have you? Take care and enjoy x
Hi Marie
You are sounding much happier now you're home!
Hope you managed to go and watch your grandson karting. And that you bought some goodies at M&S. My nearest is 70 miles away, so I have to make do with Sainsbury's!
Hope you continue to recover, and feel better every day. Devon will still be there when you feel well enough to visit!
Take care
Kate
Good afternoon Marie, curry's are fab even on a hot day, lovely to hear your feeling we'll but understandable your strength needs a little work, it will improve and I would think going to watch your grandson would do you good, as long as you're careful, I hope you have/had a wonderful time, and why not treat yourself, is daughter going to replicate any of your lovely hospital meals, it is sad your Devon trip is off, has Dave still got the time off work or are you hoping to do something else or focusing on getting "fit" again first, the audio book sounds a success, can you get them with your choice of voice or only the one it comes with, Jenny Aggutter would be lovely, for me anyway. Yes went to Cleethorpes again in the evening, 3 times in 5 days, today was exercise, friends and massage, we are trying to book a holiday to Disney World Florida, for 7 leaving this week or next and it looks like I'm likely to pay over the odds, but it's family so that's ok, I feel ok a few niggles, but fine emotionally, hospice tomorrow and seeing surgeon regarding Mandys operation, hope you haven't ate all the M&S yummies already, take care.
Eddie xx
Good morning. Yes, my strength does need some improvement but it's to be expected. I'll keep working on it I'm not going to be hard on myself. We went go karting but unfortunately on getting there it was indoors and you had to climb a lot of steps to get there. The other option was stay downstairs and watch. But there was no seats, standing only. Me & D went to browse tk maxx and m & s instead. Nice steady walk on the flat. Did me good. Was very hot mind. Grandson was happy and had a wonderful time. No, Amy hasn't replicated any meals lol I enjoyed most of them mind. I have been having some yummy food and I'm eating a lot. Constantly hungry. Not sure if steroids? D hasn't still got the Devon week off. He's working. I'm fine about it. I shall no doubt do other things I will take it easy and do each day as I find it, I'm cool. Wow trip to Florida. Awesome. Who's that for? That's ace. I absolutely loved it there. One of my all time favourites. Hope hospice went okay and you're feeling as well as can be. How did the surgeon go? No plans today after yesterday. Pottering at home. Are you up to much? Take care and enjoy
Thank you Kate for the well wishes, doing good x
Morning Marie, that's such a shame you couldn't see your grandson go-karting, though nice to hear you managed a walk round the shops, steroids often make you hungry, so you tuck in and if Dave says anything you can blame the steroids, if you think it may be an issue the best way to beat the hunger is regularly timed meals, though hopefully you might not be on them for long. I think Dave saving his holiday time for when you're upto having a little trip is a good idea. Florida not for me, especially a theme park, two eldest and 5 grandkids looking to book 3 weeks setting off this week or next, think I will be paying over the odds but it's what they need and who knows when the next one will be.
Marie, hospice today always a Wednesday and oncology surgeon appointment moved from Monday to today so we can have more time with him, have a massage, and youngest daughter's birthday party later 35 today where does the time go. PS was in Nottingham last Saturday and lots of guys in dresses is this normal for Nottingham
Eddie xx
Good afternoon Marie, more like October than August today, how are you feeling today after your walk yesterday hopefully ok, what have you been up to today, has grandson gone home, hospice was nice everyone turned up which is always good, appointment with surgeon went well, he's been talking to colleagues at other hospitals and he thinks his original prognosis may have been a little negative, booked the Florida trip leaving next Thursday for 22 days all inclusive so that's their birthday and Christmas presents for the next 50 years sorted, got my PSMA scan results, things are mostly steady so I'm happy with that, last minute change, we're on our way to Scotland. Bev a very good friend and 2 of her friends are climbing Ben Nevis for charity, they were going to go in their camper van but it's broke down and struggling to find somewhere where they can all stay so my auntie is kindly putting them up but only if I bring them, at least I'm not driving, do you ever feel you've been set up. I hope you have had a nice day with family.
Eddie xx
Having a pessimistic and down kind of day. One of those you feel that treatment just not worth it for the the side effects. I’m 2 weeks on and one week off on chemo. This is my week off and I feel so pants, usually I bounce back after a few days. If this is my quality of life on chemo then not sure I can cope with it. Oncologist next week, maybe she can give me something to help. I’m beyond exhausted and continually feel nauseous. My GP recommended CBD oil, maybe it’s time to try it?
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