Pessimistic and no faith!

Good morning. Didn't get to go home unfortunately. He said because he wants to see me fit like this for longer. And exactly as you said when I mobilise my oxygen rate goes down to 91, heart rate up quickly and he said it doesn't give me much capacity to be normal so to speak. Physiotherapy are coming to work on that. He said he will see me tomorrow. I was disappointed not to go home. Felt a little cabin fever and irritable yesterday but I seem back on it today. Everything else is good. You're right in that he said the steroids would reduce on going home so yes I won't be taking as many as, that's good. Thank you for the support details that's very helpful. I'm glad you had a good day yesterday, that's great. You sound like you was busy but got so much done, great that you achieved. I'm sorry to hear about your eldest. I hope she is bearing up as well as can be. How are you today and what plans have you? Thank YOU for cheering me up thank you for being there. Enjoy your day and take care. 

Thank you Kate. What a wonderful mental attitude to have, credit to you. I try but sometimes triggers kick in and I catastrophise. It passes. Thanks for your well wishes, means alot. What plans have you? Enjoy and take care x

Morning Marie,, sorry but not surprised you weren't discharged yesterday, they are being careful, and rightly so, with the physiotherapists help it shouldn't be long, just take things easy, remember little and often and be honest with your physiotherapist for best results. My exercise group today is cancelled, and hospice yesterday was good though only 4 turned up, hope it's not another trip to the pub. Did get some unexpected news at cancer hospital, my eldests oncologist had an oncology surgeon at last MDT meeting and they have said surgery is the best treatment and there is also a 33% chance of being cured and if not, a couple of extra years. All the family are so happy, just wish I felt the same. maybe I will soon, PS  you only have to be able to walk 10 metres comfortably and get out of bed and up off a chair and dress yourself easily to get discharged, though as we are getting a heatwave it may be a factor in getting home. Take care.

Eddie xx 

Hi Marie,  I should have said,  if  Mandys surgery and rehabilitation coincide with the wedding, then the wedding will be postponed, though I think it's a small chance and Sheila is 100% in agreement,  

Morning Marie

I hope you get good news when the doctor does his rounds this morning. As Eddie says, you'll need to take your recovery slowly, and not overdo it, but it sounds like everything is going in the right direction. 

I don't think I have a wonderful mental attitude! I'm just bumbling along, trying to live my normal life....and after 2 years of this, I'm not expecting miracles. So far, everything has been stable, and the cancer hasn't changed, but I guess it will eventually. I'm just doing as much as I can whilst I still can!

I have planned to do more gardening today, but it's raining at the moment, so maybe have to be indoors. Candy will need a walk too....but neither of us like going out when it's raining! We're not getting much of a summer up here in Scotland.

Hope you get plenty of visitors today to stave off the boredom!

XXX Kate

Good morning. Not surprised here either. Yesterday my resting oxygen was 95. Physiotherapy had me up mobilising and it was 94. This morning they are doing the stairs. Most are saying I'm going home but I'll believe it when it happens. Otherwise everything is good here. Sorry your exercise group got cancelled and only 4 turning up at hospice. That's a shame isn't it. I hope it's better next time. I'm not surprised you're not happy with your eldest. You want her fit, healthy and living a normal life. Nothing else will come close. Hope that the marriage goes ahead and all is good but understand if not and glad you're all in agreement. I'm sorry you're going through that. Dreadful news.Well I've definitely passed your discharge criteria. They've walked me far more than 10 metres. We'll see what happens today. How are you today and any plans? Enjoy and take care x

Hi Kate thank you and will do. Same here last scan showed tumour stable. Bumbling along too. I just get up every day and get through it. The ticking time bomb gets me down sometimes but what can you do huh. I try to shelf anxieties. For at least the day anyway. How are you? And how did the gardening go? Hope you got to walk candy. Shame you're not getting much summer but Scotland is so beautiful regardless. Dave visited a couple of times yesterday so yes everything is good. Take care and enjoy your day x

Good Morning Marie, fab news your sats are stable when active, the stairs and your discharge assessment should be a formality, though there's more to it than just fitness. That's the second exercise session cancelled lately, and only 4 turning up at the hospice is not too unusual, we are not well you know. Marie, I'm very happy with Mandy, I love her with all my heart and she is my best friend, the marriage may be postponed but not cancelled, I'm ok, just shopping  today and making a raised car seat for Poppy, I'm sure you will be home for the weekend, take care. 

Eddie xx 

Good morning Marie, how did yesterday go for you, is your physiotherapist happy with how you are doing, I have to say I'm delighted with your progress and looking forward to your welcome home party lol,  how are you feeling, I imagine exercising after a few days in bed is a little tough at first but hopefully it's going well and feels a little easier every day, how is the going home situation looking are you already home or packing I do hope so.  I'm sure Dave and A will take very good care of you and fatten you up with all your favourite yummies, not sure, again, what I'm doing looks like pottering, though the kids have been unusually quiet since Mandys good news,  so maybe a surprise in store. I am fine MRI came back clear, got my therapy appointment and Jo, my counsellor will see me a week on Wednesday. Baby Mandy is 40 days old today, where does the time go, say hi to your family for me and please take care.

Eddie xx 

Good afternoon. Yes physiotherapy took me to do a stair test and it all went well. Everything else was as good as could be and oncologist came and discharged me. Hooray. There was a problem with the meds to which I was expecting but they said they would be ready 8 pm. There was also a problem in that later in the day I wasn't going home after all. Ohhhhhhkay! Not sure what was going on but I came home and Dave went back to collect meds. Really glad to be home, feeling well but taking it easy. D & A taking great care of me. And yes plenty of yummy food lol. That's awesome news about your MRI. Really pleased for you Eddie. And glad therapy and counselling are in place. That's great. I hope there is a family surprise in store. That would be ace. A cheery uplifting activity would go down well. I'm listening to music and debating an audiobook. Not sure if this will work for me as to sit and listen attentively, I have the attention span of a goldfish lol Still, I'll give it a bash. Wow baby Mandy, 40 days! Wow! Doesn't time just fly. The little cutie she is. What plans have you? Did you decide to potter? Whatever you may be doing enjoy and take care x

Good afternoon to you Marie,  home at last yippee,  a little confusion at discharge is normal, compulsory even, what matters is your home  and you have all your meds, I hope Dave's filled the fridge with all your favourite things. Has the physiotherapist given you an exercise plan to help with your recovery, good to hear your taking things steady, love listening to music too and reading but never  had an audio book,  I'm  with you regarding attention span, I watch  the 1 minute weather forecast  and often have to watch it 3 times before I remember it and if I don't look at the person talking to me I'm lucky to remember 10% of what they said. baby Mandy 40 days WOW indeed, MRI was unbelievably quick , my neuropathy means a physical check for  MSCC symptoms is not reliable anymore, and it will be nice to see Jo again so may not need to see the therapist and as for any potential family surprises, Poppy and I have  gone to the coast to test out her new car seat , though I'm only 40 minutes away if needed, take it easy with the yummies

Eddie xx 

Hi Marie

So pleased to read that you are home again...it must be such a relief!

Have a lovely restful day tomorrow.

Best wishes

Kate