Pessimistic and no faith!

Good afternoon. Hope I find you well. Your family all sound like beautiful humans. Their an absolute credit to you. Yes I am allowed visitors but I have limit it to Dave and Amy because of risk of infection. There is so much covid talk I thought it best. I hope you do get your chemo. Is it all about as to whether your fit enough? I hope it goes well. I can't believe that this last chemo I had unbelievably did something to the tumour but they're saying that because it was a trigger of this infection they're saying I can't have it again. Typical huh. They have one more chemo to try and oncology say they will discuss with me in couple of weeks. I'm feeling much better. They have now changed it to a nasal oxygen thing. Got rid of the mask thank goodness. Still at 28% dependency but I think they're dropping it later. All good here so to speak. Hope hospice and farm went well. Did you do anything today? Take care and enjoy your evening x

Hi Marie,  yes I love my family and some of them are human LOL, I'm glad you are allowed visitors it makes your time in hospital so much easier,  I thought you may have been isolated, nice to know your not,  Marie my issue with chemotherapy is the toxins it releases into the blood, if they think my heart may struggle/fail I won't be given any.  How do they know what impact your chemotherapy had on your present condition it is linked to radiation, maybe worth getting a second opinion, fingers crossed for the next one, lovely to hear your feeling we'll and moved to a nasal cannula, met friends from hospice at a pub to remember a couple of friends who are no longer here , in a happy way, farm as always was fab and quiet day today just exercise group, Sheila back soon which will be nice.  Say hi to Dave and A for me.

Eddie xx 

Hi Marie

Just dropping in to say that I hope you are continuing to feel better!

It must be a relief not to have to wear the oxygen mask all the time, and makes communicating easier too.

I was in a single room for 9 days when I was in hospital....it is great for privacy, but not so great if you're bored and cut-off from chatting with others. I hope you can occupy yourself when the family are not with you, and that they have been able to visit you regularly.

Fingers crossed that you will be able to be back at home soon!

XXX Kate

Good morning. Yes I agree as to what you're saying about the chemo. They did say the radiation caused it but coupled with the chemo as it is on the rare side effect list. They are bringing me back to discuss chemo so I will discuss this with them further. I hope you get some joy too with yours. Still all good here. They're dropping my oxygen intake some more today and there's talk of me going home towards the end of week so all good. Hope you had a lovely day at the pub. Fabulous. How are you and what plans today? 

Hi Kate so good to hear from you and thank you for the well wishes. I hated that other dreadful face mask. This one is so much better. I do much prefer a private room and surprisingly I have no cabin fever or irritation as yet. Family have been visiting twice a day, it's been fine. Thank you Kate and there is talk I will be home end of week, fingers crossed. How are you, I hope you are keeping well x

Hi Marie

I'm doing fine at the moment, thanks for asking!

After a few days of socialising, which I'm not used to, the rest of my week should be much quieter.

I have another of my 'monitoring' scans in a couple of weeks to look forward to.

Keep on getting better Marie!

xxxx Kate

Morning Marie,  lovely to hear your doing well and your oxygen is being lowered again and hopefully going home soon,  how's your mobility, are you allowed to get out of bed yet, it will be a big factor in your discharge date. Marie I'm not expecting to get  chemo, but the exercises  I have been doing have helped me in other ways and if I can get chemo that will be a bonus.  The pub was a little sad at times but mostly a happy time, I have exercise, friends, therapy and Dr's  today and I am ok, lovely to see Kate posting you, PS  kate likes to be called Puddock, take care 

Eddie xx 

Good morning. Hope I find you well. I have been mobile yesterday. Just to the toilet and round about my bed. I feel okay but I've only gone a short distance really so I'm not expecting miracles when I get home. They took me off the oxygen dependency last night and up to now everything has been fine. They've switched all medication to oral form. All 18 of them!! I'm guessing that's so I can take what's needed home. My cancer support nurse came to see me and there is talk I will be going today. Will know more when the docs been. Good news!! I hope you do get chemo but also glad to hear it's doing you good in other ways. Glad to hear the pub went well even with the sad times. You sound like you had a busy day I hope everything went to plan and was okay. How are you today and what plans have you, if any? Take care and enjoy x

Good morning Puddock lol and thank you for the well wishes. I am pleased to hear you are doing well. Glad for your socialising but yes although it's a good thing can still be tiresome. Enjoy your me time and rest. Ugh I hate scan times. Hangs over your head like a dark cloud. Such an anxious time. I hope you may find a way to shelf it until such time. Take care x

Morning Marie,  that's good news your back on your feet even if it's only a few steps, it's where we all start.  Off oxygen as well that's fab might take a couple of days to get used to less oxygen so please take it easy.  oral meds are for you to take at home and hopefully you won't be on 18 for long, at least you know what your having for breakfast, and going home soon that's wonderful news, I don't think your  CSN would mention going home if she didn't think you were,  Marie  I don't know if I  have mentioned the cancer council support line  13  11 20, 

Sorry Marie,  pressed wrong key....the support line, you can talk to CSNs and other cancer specialists,  good luck with the doctors. Mostly a good day yesterday,  GP  has referred me to talking therapies and is getting a MRI appointment for my lower back and pelvis, today is  hospice and taking my eldest  to hospital to prepare for  her cancer treatment which starts soon. Hope your home soon and off antibiotics soon so you can get on with life. PS thanks for cheering me up, take care. 

Eddie xx 

Morning Marie

It sounds like everything is going in the right direction now, and you'll be home soon. Try to take it easy, and not overdo things once you get home! 

I'm not too bothered about my scans now, and worrying about the results won't change them, so getting anxious is wasted energy. That's what I tell myself each time I'm waiting. 

Hope everything continues to go well for you Marie.

XXX Kate