Pessimistic and no faith!

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Morning all, hope you are all keeping well.

Had an appointment with my Oncologist yesterday, he authorised another 9 chemo's. But I haven't yet had a scan to see what effect the first round of chemo has had. He said on the basis of questions he's asked  me, my responses and the look of the area concerned is a clear indicator that the chemo has had some effect on the tumour. This is positive news right? But still I am mentally unable to accept it and remain pessimistic to safeguard myself. I believe this is because I have no faith and went through such a bad rollercoaster time when they were trying to find a diagnosis. I mean amongst other mishaps they completed a scan and advised me it wasn't cancer I had a bleed. Yeah right, I actually had a 15 cm tumour, how the hells bells do you miss that on a scan huh!! Now when they give me positive news, I struggle to accept it as I'm so scared they'll give me hope but then only take it away again down the line. Does anybody else feel this way?

Food shopping today and I think a cream cake is in order! Hope you all enjoy your day whatever it is you may be doing. 

  • Eddie, sorry, I'm in my own room. It's nice actually. Rather like an hotel room with en suite x

  • Morning Marie,  how are you feeling are you sleeping, eating and drinking ok, are you confined to bed, pneumonitis  treatment usually starts working quickly with everything back to "normal " in a week or two, good luckily with the echo, I'm sure your familiar with them, and good to hear your O2 dependency is improving, I would have a talk about  chemo when you feel better. Marie, I have noticed you are occasionally a little pessimistic, totally understandable in our situation and yes I can be as well. Will post again later today but  maybe on private messages, take care 

    Eddie xx 

  • Not much sleep, couple of hours. He said I probably wouldn't sleep having them meds. Eating and drinking well, no problems. Yes, I'm confined to bed. I'm permanently attached to the oxygen machine. Also, movement and even talking too much, that's me, raises my heart rate quickly. Echo was done this morning. Overall I feel pretty well all things considered. Yes post wherever you need to. Always good to hear from you. Take care x 

  • That's very good to hear Marie, apart from the sleeping which was very likely anyway as you say and your racing heartrate should stop when your well enough to come of oxygen. Are you enjoying your meals, I always thought they were ok, PS get friendly with the cleaners their great at smuggling in a treat or two and are nice to talk too as well, though hopefully your good regarding visitors. I'm ok, my girls took me out yesterday to "celebrate" the day I got my official diagnosis, don't ask, we went to Aurora Worksop and Wellbeck farm shop, which was lovely even if I did end up paying for everything LOL. say hello to Dave and A for me, please take care.

    Eddie xx

  • Good morning hope I find you well. Aw that's awesome your girls took you out. Not so awesome you had to pay mind loI do so love wellbeck. It's just you end up paying a fortune. Worth it though eh. I'm feeling well again this morning. I'm running on 35% oxygen machine dependency so that's an improvement. I presume they will lower it again today. Got told the likelihood is I wouldn't sleep last night but quite the opposite I was quick to fall asleep. Still woke at 5 but I managed about 4 hours sleep. They left me to sleep and didn't do my obs in the night. I've found the food has been good. Portion sizes are smaller but I've not gone hungry and the choices are good. I've had so many different people in and out. I'm not even sure who the cleaners are. But they're all a friendly bunch. The guy who did the echo was a grump. Probably because he had to come to me because I can't go to him. So how are you doing and what plans have you for today. Any news? Thanks for checking in on me and enjoy your day. Take care x

  • Good morning Marie, Great to hear your feeling well and your condition is improving and you got some sleep as well that's fab, It's a big help to sleeping having your own room, I'm usually in Obs or CC though I was on a ward last time but unfortunately my roomies didn't speak English, PS I was reading a blog from a friend and was laughing one minute then crying the next so they probably thought i was weird and best avoided. Nice to hear you like the food too, the odd thing isn't good but mostly it's fine and for £4 a day you can't complain, and it's easy to spot a cleaner they will be sweeping the floor or wiping the surfaces LOL, and you met the hospital grump he's probably never happy, so long as he knows his job. Always nice to see the girls together and that they are so close, always have been and hopefully the youngest two always will be. Done my jobs for the day and no plans to do anything, just walk Poppy "Sheila away", catch up with paperwork and pop into the bank to see what i'm doing with my accounts, what fun. oh and I am fine. 

    Eddie xx

  • Good morning and thank you Eddie. I much prefer to be in a room of my own. I prefer the privacy and independence. Typical with you huh your roomies not speaking English. Company but you can't socialise lol You're spot on about the food. Most is good but I did order the fish and chips and the fish wasn't nice. In fact I don't think it was fish lol Shame I was really looking forward to it. I found the cleaner lol To be honest that's the first time I've seen her. She was lovely. Very chatty and kind. Your girls sound beautiful, I'm sure they are. Glad you had a nice day. All the same here. Still 28% dependent on the oxygen machine. They're not dropping it today. They're saying I've dropped alot in a short space of time and they want me to spend more time recovering. Fair enough and otherwise I feel fine and everything else is the best it can be. Hope you enjoyed your Poppy walk and got your chores done. Where has Sheila gone? What plans have you today? Enjoy and take care x

  • Morning Marie,  how are you feeling today,  hope your feeling a little  bit better, anything happened yesterday, you thought they may lower your oxygen, any chance they will let you get up maybe to sit in the chair or take yourself to the bathroom are you still getting lots of hospital staff popping in, have you sussed the cleaners out yet. Are Dave and A allowed to visit at set times or  can they visit you anytime, within reason,  sorry for all the questions. Didn't do much yesterday and today meeting some friends from the hospice and off to farm later, PS, I'm ok. Take care  

    Eddie xx 

  • Hi Eddie. Did you not get the thread message I sent this morning. I can see it. It's just up there lol If not let me know x

  • Hi Marie, yes I did get your message it came as I was typing yours,  glad you've found the cleaning lady, their so friendly and helpful, nice to see your oxygen has been lowered and it's normal halt reducing it for a day as well, I am so lucky to  have my girls, I would like to think they take after me,  though thankfully they look like mum. I'm pushing myself to get a little fitter for my cardio  MOT in a few weeks to hopefully, though  unlikely, get a chance at chemo,  all bank matters sorted, Sheila is in London with friends and I am meeting friends from the hospice before going to the farm, Marie you never answered are you allowed visitors. Great to hear your feeling we'll,  I'm ok 

    Eddie xx