Pessimistic and no faith!

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Morning all, hope you are all keeping well.

Had an appointment with my Oncologist yesterday, he authorised another 9 chemo's. But I haven't yet had a scan to see what effect the first round of chemo has had. He said on the basis of questions he's asked  me, my responses and the look of the area concerned is a clear indicator that the chemo has had some effect on the tumour. This is positive news right? But still I am mentally unable to accept it and remain pessimistic to safeguard myself. I believe this is because I have no faith and went through such a bad rollercoaster time when they were trying to find a diagnosis. I mean amongst other mishaps they completed a scan and advised me it wasn't cancer I had a bleed. Yeah right, I actually had a 15 cm tumour, how the hells bells do you miss that on a scan huh!! Now when they give me positive news, I struggle to accept it as I'm so scared they'll give me hope but then only take it away again down the line. Does anybody else feel this way?

Food shopping today and I think a cream cake is in order! Hope you all enjoy your day whatever it is you may be doing. 

  • Glad to read it all went well! Hope you don't feel too unwell afterwards.

    Enjoy your time chilling today!

    Kate.

    You haven't said what a div donk is! in my family, we called people 'twerps' and 'wassocks' if they were particularly daft or clueless....oh, and 'gawmless' was another one. Not sure if they are Yorkshire expressions, or just in general use in the 60's and 70's.

  • Hooray, hallelujah a miracle has happened, what a difference it makes to your day, what did you do to celebrate or were you in a state of shock, seriously that's fab news and I hope you made the most of your unexpected free time, a celebration meal maybe, Marie Barn owls are white and they like to live in barns, sorry about the chemo and LGFB clashing, you sounded surprised i knew something, I'm not there just yet, I have faith you will work something out, and I don't think you are a div donk, Marie what is it you wish to do at the LGFB class?. I remember you mentioned eyebrows a while ago, I hope have something planned for tomorrow now SUMMERS here, hooray again, YIPPEE works too, 

    Eddie xx

  • Hi Kate these are words, we heard as kids, I think most are Sottish but excuse the spelling, skelp, glaikit, puddock, blether skate, kelpi, and nincampoop, the only one I still use is puddock. So Kate and any other Scots reading this, if you have anymore little used Scottish words i would love to hear them, the correct spelling of my ones would be nice.

    Eddie xx

  • Hi Marie, hope you are feeling well and you've had a good day and made the most of the lovely weather. just farm shop & exercise group, though a big bake later, I've been wanting to ask you for a while, does Dave have any relations in Doncaster as I have a friend who looks very similar, I will take a photo of him if I remember. It was an emotional time at the hospice yesterday, we had the senior palliative nurse talking about end of life, and your wishes regarding care and how to refuse it, I spoke first, as usual, as I have already planned for the end and have years of experience in palliative care and I was talking to someone else who knows what peoples emotions and thoughts are at end of life I  could be very open about everything, family, friends, independence, pain, disease progression, likely bumps in the road, where i want to die, and when to stop treatments, 35 minutes I talked, and I felt so much better for it, all the things i have been thinking about for the last 2 years came out and felt so good getting them out in the open

    Eddie xx

  • We might find the moderators on our tails....maybe some of these expressions could be considered offensive? I don't personally find them so....they are rather quaint!

    I'd quite like to be called a puddock, it sounds warm and friendly!

  • I wish more people were given the opportunity to do this...open up in a non-judgemental supportive atmosphere, and talk about end-of-life care in an honest way. Maybe you could write a blog about it Eddie, and start the ball rolling? Only if you think you could repeat the gist of what you said today. I'm sure it would help others.

    Even in this forum, we don't talk about it much.

    Hope you have a good evening!

    Take care

    Kate

  • Hi Kate, I honestly thought I was doing pretty well emotionally, and I did feel ok but it looks like I wasn't being truthful to myself, not openly but subconsciously and strangely I also feel better physically. As I talked longer, much longer than expected, many of the others never got too so will hopefully get their chance next week. Kate my memory, especially regarding very recent events is patchy at times so I would be lucky to remember half of what I said, but next week I will talk to the nurses and fellow patients to see if they can jog my memory, I may ask, though I think it's probably inappropriate, If I can record what the girls say, Kate since my diagnosis over 2 years ago the hospice is the only place I have found where I can talk to a group all with a terminal prognosis, ['m still the only guy and the youngest as usual but that doesn't matter to us does it, Don't know if a blog will be possible, but maybe a post on end of life care our hopes and fears and when to say enough is enough, maybe PM me some thoughts.

    Eddie xx

  • Hi Kate all the words are perfectly harmless, the moderators it seems may have a Scot amongst them, a puddock, the one I still use is what we called frogs, the amphibian not the French, I will happily call you my little puddock if that's what you wish, Anyway what have you been up to today, did you enjoy your time with the 3 dogs, sounds fab to me, hope you had the good weather too.

    Eddie xx

  • Ok Eddie....The recent thread on death was quite good in that respect...it got a lot of responses. 

    I think part of the 'shyness' about talking about end-of-life is that very few people are knowledgeable about dying as a natural process...what happens to our ability to digest food, drink, breathe...we don't really get the chance to learn about it, unless we are in the nursing or caring profession, or we have been with loved ones when they are at end-of-life. Mostly, it is a fear of the unknown.

    And, of course, most of the people who use cancer support services are busy trying to stay alive as long as possible, and don't want to think about death.

    Anyway, I'm glad you found today's experience helpful and productive!

    Hope you have some interesting things planned for tomorrow. I'll be gardening again, I think.

    Take care

    Kate

  • you are correct Kate most peoples understanding of dying is limited, I'm not going into the details as the reality is often nothing like what a lot of peoples understanding of the process is and nothing like the hollywood image of slipping away peacefully surrounded by loved ones, though It dos happen sometimes. Anyway it's a subject that requires we tread carefully, respect other peoples beliefs and don't add unnecessarily to peoples fears,

    Eddie