Pessimistic and no faith!

Gosh! Can just imagine that! The Incurables Camp! Sounds like some strange 'Carry On' film!

Hi Kate, though I think it was just banter, i sometimes think it would be nice to meet up. I do have a handful of friends who are also terminal and it's great when we meet up and nearly always funny. Though the downside when one of us is lost is really tough. How did you get on with the floors, have you left them for another day. Had physiotherapy today, turned out to b my last but not discharged, can still see her if i need to, take care.

Eddie xx

Yes, socials are fun, but so many of us and really spread out across the UK and beyond!  i haven't joined in with any support group type meetings yet....prefer small group chatting, or one-to-one.

My kitchen floor is now gleaming, but I've yet to do the living room and hallway. I have the same hard flooring throughout the ground floor. It's ok, but has a slight texture which traps dirt....mostly of the muddy paw print variety. Candy is a large dog! With huge fluffy feet!! 

Hope you can access your physio again easily if you need to, without going to the back of the queue.

Anything interesting planned for the weekend?

When i was referred to physio in January i was 1465 on the waiting list, but luckily someone cancelled and i jumped the queue, and the lady i see has been great, Me and my terminal friends met on other courses as there were no groups just for us, though I am helping a counsellor friend to hopefully set one up with support from a local Uni. Great to hear your kitchen floor is gleaming, poor Candy getting all the blame, Kate I have no plans and nothing that needs doing other than walking Poppy, how about you.

Eddie

Hi Eddie & Marie, I hope you are a bit warmer now Marie, it actually got so cold on Wednesday, we put our heating on at night, I think it was more the dampness that seems to get into my bones as when it is damp my joints are terrible! It was a lovely afternoon today and then after my visit to my friend, as I was going to the car, the heavens opened! It always seems to catch me out on a Friday.

Eddie, I am not sure if the meeting up for an ice cream chat was "just chat" or not but it was the ice cream place at Seaham we were talking about! Vince and I go to just outside Durham next Saturday for a week and I had been asking which beach was nicest, Roker or Seaham. Then we got to talking about ice cream as you can't go to the seaside without having an ice cream!

For 3 years in a row we went to Scarborough and each time I met up with one of the incurables, it was lovely catching up in person! Unfortunately although he had been fighting for 7 years, he lost his fight at the beginning of last year. Of course it was upsetting but we all know the Group we are part of. I am still so glad we met. The first time our spouses came, then after that they went for a walk and came back to have lunch with us!

About the classes at the Hospice. Once I stopped one class, when others came to the end of the course, I would have felt selfish carrying on when others hadn't been to any. From then on, I just stopped going, to be honest, living this long after dx I felt like a fraud!

Have a great weekend everyone!

Morning Annette, I feel the cold a lot more than I have ever done and damp weather or a cold wind makes things so much worse and my arthritis plays up, my heating is always on, but set to come on if it's cooler than 19 degrees, I think meeting up was just chatter, but I often think it would be nice too, I have been to Seaham beach and enjoyed it but can't help with Ice cream as I don't eat it often. You have told me about your friend at Scarborough and understand the bond you feel for fellow terminals and how hard losing one hits you, but as you say that is life. Annette do you not go to Maggie's, they do many courses, as for my hospice, you have to fill a form in, signed by GP, and if you are too "well" or too poorly you don't qualify and even though the waiting list is very short i said if anyone's need was more than mine to let them on first, though obviously not as i started within a month, I am very lucky to have 2 alternative's, You are definitely no fraud, It's not a crime to still be here, I'm 53 years past my original expiry date and have had many close calls along the way and I have been told a lady in Dorset and I  who both had the same surgery at the same time, the operation was brand new, in Glasgow. are the last 2 survivors by many years, am I a fraud as well?. Have a fab time in Durham, my old Uni town, you will love it, no plans for the weekend yet, take care.

love Eddie xx

i'm feeling much better today. I managed to eat yesterday. Not much but still it was something and im hoping i will eat more today. It would seem ive followed the same pattern of behaviour as last weeks chemo but it certainly wasn't as bad as the first time. I don't feel as cold as i did but it is lovely and sunny here this morning. I will monitor it and thank you for the info. I thought you was joking about the food suggestions lol I would love to be able to eat anything but when i feel like that i just cant bring myself to. I cant even keep one of those meal substitute drinks down. If its going to last a couple of days i don't suppose not eating much in that time will harm me greatly huh. Im sorry you couldnt change your appointments. Not great is it. Your enjoyment activities are all part of your overall wellbeing and good for you. You would think they would be a bit more accommodating huh. Oh what thoughts did you have about the glamping lol Im quite looking forward to it, we have our own private bathroom, kitchen etc so its all good. The weather forecast is not great mind boooooohoooo!! When i said WE i meant me, Dave AND the daughter. But of course you, annette and anybody else for that matter is welcome to attend. You can pitch a tent huh lol I think im going to love it too. I think im having a gardening day if i can manage. Im going to the garden centre to get some flowers for the pots that haven't come through and hopefully get them all potted up. What plans have you? Enjoy and take care X

Hi Eddie

I've actually woken up late, so am only just getting going. It takes ages for me to feel fully functional....it's the adrenal insufficiency thing. The steroids need time to give me some energy.

I'll be walking Candy, between rain showers here I think. Then maybe more floor washing, or gardening if it stays dry enough.

Oh, and dealing with a pesky tyre on my car, which keeps losing pressure. Probably a slow puncture. I'm getting a new tyre fitted on wednesday. 

The group you are trying to set up sounds interesting, and much needed. I hope you can get it off the ground!

Enjoy the weekend, whatever you do!

Kate

Morning Marie, suns out here as well yippee, but not for long, so happy you are feeling better and managing to eat something, often nibbling can work, and not feeling as cold either, a lot of positives. As you say your recovery is similar to your last cycle so knowing your going to be ok soon must help. Apart from holistic and exercise i haven't done any groups for well over a month, and it wouldn't be fair to expect others to change their schedules for me, though I'm doing a wellbeing one day course on Thursday 10am with Claire the counsellor Marie. Sorry but i can't remember what i thought glamping might be, though I know you will like Anglesey, I did look up glamping, not for me. though only 3 hours away, who knows. I'm sure you will all have a FAB time without me. I'm sure you will get to the garden centre just listen to your body. usually I have options for the weekend but everyone's being unusually quiet, will go to see my friend and take the dog out to allotment.

love Eddie

Morning Kate, I have to do light exercises and stretching "physio's routine" which between having a bath and other things takes about a hour before I'm ready to go downstairs though it's a big help with getting through the day, walking Candy where you live must be so nice, a choice of the coast or the forest, I am jealous. I would do gardening, save the floors for when it's raining. The group which we are all very hopeful will happen will be down to all the work my counsellor friend and the guys from the university have done, my part is very small. I'm off to walk Poppy, take care.

Eddie xx