Pessimistic and no faith!

awwww Eddie that's amazing news. That's ace. WOW. Congratulations to you both. Do you know when, where? That really has put a smile on my face.Me and Dave got married at Gretna Green last July. I mean we came back to all that is cancer but still cancer will no way take away the wonderful, amazing time we had. Well, I'm feeling better than I did, I'm a little tender but I'm up and about and eating and drinking. Because I didn't attend radiotherapy session yesterday the consultant registrar rang me. He was thinking of admitting me because he believed I may be dehydrated. I advised I was picking up, eating, drinking and he said he would ring me today. He believes it is radiotherapy that is causing it. I will have to see what they say when I meet with them next Thursday. The palliative care team are coming today so i will let you know how goes it. How did it go with your surgeon, anaesthetist etc? Hope you have some good news.  

Good morning elliekate. Hope you are still well after your radiotherapy. You do so well to be up, out and about, you are a legend, long may it continue. Oooooooh I love bolognese. And chips!! Chips mmmmmmm!!! I was really taken a back at how ill I've actually been. It really has affected me badly and the sickness, not been able to eat/drink anything has made the situation much worse. Anyway, I'm picking up and starting to feel better which tells me it is the radiotherapy. I didn't attend my radiotherapy session yesterday. I made a decision it was not a good idea taking into account how I was feeling. The consultant registrar wanted to admit me into hospital because he believed I may be dehydrated. When I explained I was eating/drinking now he said he would ring me today. He believes it is the radiotherapy that has caused it. The palliative care team are visiting me today, to sort out pain relief etc. It's a sunny day here. I hope you have plans, enjoy your day whatever you may be doing X

Hi Marie that's great you are feeling a little better, and eating and drinking ,lets hope the week off RT helps you, glad your seeing the palliative care team, mine are great, i have the hospice one, are yours hospice or community,  The meeting at aurora was great another "patient" turned up so i had support with all the questions , operation have 4 to 6 months to decide and a 75% chance of surviving, though alternatives are being looked into. wedding November in Australia all being well, take care.

Eddie xx

 MarieT I hope the palliative care team have been able to help you, they have been so much help to me with pain relief. Have you managed to eat and drink a bit more? I've had the increased pain and tiredness still but I'm hoping that will pass soon it should do.

The sun is shining here today so I might just wrap up and get out in the garden. I've got some potato tubs to try and grow. I am pretty hopeless at garden things but my husband built me some planters from pallets that were getting chucked from where he was working so he brought them home and he built me a two seat bench with a table between the seats and made it higher so I can get up out of it and some planters. He then made a couple for friends who admired mine. It's not something he's ever done before and I am very proud of him.

 eddiel congratulations on your plans to get married. In Australia wow how amazing, do you have family there or is it just where you would like to get wed? We got married in Orlando just me,Neil and the 2 kids. Booked on a Wednesday got married the following Tuesday. Best day ever. My daughter's friend is teaching in Australia for a year.

Have a good day everybody. Now I decided to go in the garden the sun has gone in!!

Hi EllieKate and thank you, Sheila has a sister in Aus and migrates there every winter, so hopefully that will be where we get married. Orlando must have been amazing was that planned or a last minute decision, must have been great with the kids there, Shella and I have 5 kids and 8 grandkids though non together, but it would be wonderful to have them all there,

Eddie

Hi Retired61, I was told T2 and a month later T4 incurable, but as you say, make the most of the time we have and don't let the dark days take over, and the Drs are mostly guessing, many outlive their best before date, best wishes.

Eddie

Good morning Eddie, hope you are keeping well. Feeling much better thank you and I've picked  up more and more the longer I have been away from radiotherapy. I am back to see them this thursday, really not sure what will happen. The palliative care team were amazing, I believe they're community. They've prescribed me with new things for my ailments. Unfortunately, the pain relief remain the same. She says I'm not helping myself in not taking the morphine. She wants me to take it for a period of 2 weeks to which she will reassess. I have been taking it a few days now and yes, it does help with the pain, just feel really drowsy and tired. But I shall keep going for the two weeks. They are also coming back this week to provide me with some adaptations to help me in the home, which is great. Overall, they were fab. They've also referred me to the district nurses, the more the merrier so to speak. Glad your meeting at aurora went well. Wedding in australia, yayyyyyyyy that's absolutely amazing. Awesome!! Well, I haven't been doing anything massively exciting, just pottering around the house and garden. But, still, I'm just so glad to be up and about doing that. How about you? What news have you? Take care and enjoy your day.

hi elliekate i hope you are keeping well. The palliative care team were fab. They prescribed me with things to help me with my ailments. They didn't change the pain relief as she said I am not helping myself in refusing to take the morphine. She set up a two week plan and said she would reassess after that. Over the past few days I've been following the plan and yes, the pain has been much better, just feel drowsy and tired. Will see how goes it. They're also coming back this week to fit some adaptations to help me in the house, which is all good. And they've also referred me to the district nurses, the more the merrier so to speak. Yes, I'm eating and drinking and feeling much better. It would seem the longer I'm away from radiotherapy the better I feel. I'm back to see them on thursday so shall see what happens after that. Defo don't want to feel like that again ughhhhh. Hope you are still okay with yours. That sounds ace that set up in your garden. I would love that. That is what I've been doing, not a great lot, just pottering around the house and garden but I am so glad to be able to after feeling so unwell. Take care and enjoy your day X

Hi Marie so happy your feeling better, pottering sounds great, hopefully a start to something better when the weather picks up, thought you would like the palliative care team, mine are fab, did you ask about a change of pain management, or how to manage or minimise tiredness, as for Thursday I'm not sure what will happen. What adaptations are you getting, if you ask them to refer you to occupational health they can help you too, District nurses are fab too, Bev "mine" sorts out my problems and she phones me every week and i can call her any time i need. Marie i have to apologise i thought you were in already seeing these services, if i had known i would have mentioned them to you. Wedding in Aus only a hope just yet, the practical side of getting just family there is not easy. Nothing much to report only meeting at Aurora with local Uni team went well, i was thankful another "patient" turned up as 2 hours of questioning might have been too much, hope it helped with the programme they are hoping to set up, Have my last counselling session at hospice today, so must dash, take care.

Eddie xx

Thank you Eddie, I feel much better and I hope I find you well too. I've still got problems with my tummy. Loss of appetite, feeling sick but they've provided me with anti sickness meds and some of them supplement drinks so I will plod on and hope my appetite improves. The palliative care team didn't change my pain management. She said that I am doing myself no favours in not taking the morphine. She agreed a two week plan whereby I would take it on getting up in a morning, she said she would review it in two weeks. I have been taking it, it does help with the pain to be fair, just makes me drowsy. The radiotherapy doctor rang me the other day on her return from holiday. She said she was concerned about my illness, believed it to be the radiotherapy and thought it best to stop it. She said the bad far outweighs the good and that she believed anyway that the radiotherapy had done nothing to help with the tumour. I agree with her and I'm happy to stop it, so no more radiotherapy for me. I am meeting oncology tomorrow to discuss these anti cancer drugs they want to give me so I'll let you know how goes it. As to the adaptations, don't really need any at the moment but they said they will be there for me for the future. Fair enough. So they're providing a bed rail, perching stool, commode and wheelchair. If I need them they will be there, if not I can send them back. Anyway enough of me, how are you? Please don't apologise, you wasn't to know I had these services in place, you are always useful and forthcoming with information. How did your last counselling session go? And what news have you for me? Enjoy your day and take care.