So after the radiotherapy they said issues could get worse before getting better so a bit of decline in leg performance was expected. New drugs took forever to get to me but I was able to start them on Monday. Today legs rubbish pain in back horrible, no urine output and raised temperature. So call the assessment line and called straight in.
Had blood & urine tests, ECG,MRI and regular obs. catheter installed and now feeling a lot better except the legs are still rubbish
they have doubled my steroid dose so I’m guessing sleep isn’t going to play a factor for a while
anyway how’s your day been?
Oh I'm so sorry to hear that you are back in hospital but I suppose if they get you sorted out, it will have been worth it! Heavens, one day you are trying to reduce the steroids then soon after they are doubling them. It is hard enough to get any sleep in hospital, I hope you have an iPod with earplugs to shut out all the night noises!
Hope you get sorted out and get home soon! By the way, no one would EVER call you a fraud!!
Love Annette x
Aw Richard, so sorry to hear that you're back on the ward again. I'm afraid my day was much better and I hate to admit that.
I hope they find the medical equivalent of WD40 and they get those legs working again. From someone who is in a wheelchair I understand the legs situation more than most. I have to say though that it has given me a lot of independence and I can be thankful for that. And also reduced admission rates, doors being held open for me etc, etc.
Hope today brings you better fortune Richard.
Tvman
It one one those things, I know that’s where it’s going but I’m fighting hard to delay it, whilst shopping for mobility scooters and walking aids. I still have good strength in my legs it’s sensation and coordination that’s going wrong. Every time I put my best foot forward it actually goes left lol
Richard
be safe, be nice, be you
Oh no Richard I am so sorry to hear this. Glad you are more comfortable now though, and hope they have you sorted so you can be back home soon. Xx
Hi i bought a mobility scooter last year and liked it very much, just a small one that comes apart easily for in the boot of a car, but didn't realize how bad some of our footpaths are,as scooter has no suspension alot of paths are ok just some knock hell out of you.
One with suspension is a better ride, also bit more milage is handy just incase.apart from that, wouldn't be without one.extra scooter bags are very handy and good idea .I managed to get a proper trailer saves loading up scooter but awkward around shops sometimes .
Good luck with hospital and looking for scooter .
Billy
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