Reality check take 2

• I’m so sorry to hear this Ruth, not the news anyone wanted. I stopped cancer treatment because the chemo doesn’t cross the blood/brain barrier and wont help with the cancer in my spinal cord. My care has been handed back to the GP and so far so good. I’ve had the same Oncology team for 3 years and through 4 hospital admissions and it does feel like a wrench to not see them now. They’ve said I can call them, and if things change can see them again but otherwise I’m in palliative care now. 
  I feel like I’m in the right place at the right time so that’s reassuring, but it’s a big change. I hope you’ll be happy with your decision too. Thinking of you & sending a big hug xx

So sorry to hear your news Ruth. Good luck with your scan in May.

Will keep my fingers crossed for you.

Take care 

Patmart

Hi Tinalay, Oh if our friends ever met, I'm sure it would be a battle for power! Now unbelievably my friend has planned days out for this week and next week on the Wednesdays! I've had to ask her to cancel both lunch bookings because this Tuesday I get my 2nd covid vaccine, so I don't want to have anything planned for the Wednesday, in case I feel like the last time. Also the following Wednesday I am meeting my two sisters on the Thursday and I can rarely go out 2 days in a row! I told her I would phone her this Wednesday if I felt ok after the vaccine and we could just go for a coffee! Her answer was " You'll be fine, you will make it for lunch as you are so strong, you take these things in your stride, although I don't know how you manage it!" I said i would rather not book anything and see how i feel. So she then told me if I made the effort to go, she knew I would enjoy it! There's no telling some people!!

Hi Ruth, I was so sorry to read your latest news. It was a target drug trial I was on and after over 3 years the side effects were getting quite horrendous. So after a discussion with my oncologist, it was decided I would stop the drug and we would watch and wait then if there was growth, we would decide what to do then! Ruth, that was Sept 16 when I stopped the drug and every scan since, I've hoped for the best and prepared for the worst!

I do hope you follow in my footsteps! I, like Maz wondered if there was slow growth or no growth! Good luck with your scan! We are all routing for you!

Thank you all for your messages and support.

I have emailed my oncologist this morning and will arrange a date to discuss the new scan results at the end of May. I am preparing myself for a change and to stop the Atra tablets I have done well and will be 12;years post diagnosis in July 

Lots of love xxx

Just had a phone call from my Consultant in Leeds about the MRI on 17th April. One new small area of concern in the brain but not suitable for Gamma Knife treatment. He was lovely & said forget about hospitals, no more scans or appointments. Make sure you get the best care available and enjoy the time you have left with family & friends.

Good advice, I’ve got this. xx

You've got this with a firm grip. Xxxx

Oh Tinalay, do exactly as the doctor says and have a lovely time with those you love and care for. And remember we all love you, so take care.

Tvman xx

Hi Tinalay, I think he told you what you already knew but it is still hard to hear it!

We all love you and hope you have many memories still to make!

Tinalay, you know it was coming, but still hard to hear. Please try to enjoy the time with your family now...sending you a big hug.